Oh dear. Show what a wonderful understanding doctor you are who would never gaslight patients, unlike your ignorant colleagues, then throw us...
Well said Peter. I wish Cochrane would be open about their reasons for their about face and republication of the Larun review. Who persuaded...
Given that forum threads are open to all members, I welcome people from all nations giving their perspective. It can contribute usefully to the...
I'm not sure what you mean by us focusing on UK based solutions, @Sasha. What are you envisaging?
It looks to me like they are saying they intend to spend the bulk of their reserves on projects with local health boards on developing their...
I guess it means they know they have made a mess of their governance and Articles, and are putting a positive spin on needing to get an expert in...
The term pacing is fraught with unspoken assumptions on both its meaning and therapists unfounded confidence that: a) they know better than...
Thread here: Antihistamines improve cardiovascular manifestations and other symptoms of long-COVID attributed to mast cell activation, 2023,...
Copied from the link: Post Covid Network Nederland and the Radboud Center for Philosophy and Society are hosting a workshop on Post-COVID ethics....
Discussed on this thread, I assume it's the same version 'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.
I started reading the article but found the advertisements so objectionable that I decided not to read on. (objectifying semi naked women). I hate...
I don't want to derail either, so I'll just say I think there are likely to be different categories of material published by the forum, which can...
Has this got any better now Esther Crawley seems to have vanished and her last 2 big studies, MAGENTA and FITNET have reported in publications to...
I think one of the differences in terms of amounts raised by the charities is that 'the public' understands that Parkinsons Disease and MS are...
Wow, thank you! I am a bit obsessed with getting PEM defined separately from all the other forms of symptoms during and after exertion. The...
A trial of a psychological therapy for children or adults that is based on telling then to ignore their symptoms, or that their wrong thinking is...
I agree it's unhelpful to use confusing language. I was using the term used by the person I was writing to. I think symptom guided pacing might be...
My point is those who do manage to increase activity levels it's likely that improvement came first, then enabled them to do more.
I'm sure you do need a referral. I don't know whether it can be from a GP or has to be from a specialist.
I am very concerned that some ME/CFS clinicians, clinics and charities are recommending various versions of pacing up, and claiming it's NICE...
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