There's a big difference between the MEA and S4ME in this regard. We are just providing an online space for people interested in ME/CFS to discuss...
This review article might be useful, Biopsychosocial risk factors of persistent fatigue after acute infection: A systematic review to inform...
Those clinical professionals who change their minds about BPS based only on their own experience can be unreliable allies, not just a certain Mr...
This thread might be a useful source of publications. Simon Wessely Research & Related Quotes particularly posts 3 and 4 with quotes and...
We should also be aware that this discussion has only been running for a couple of days. There may be other forum members who would like to make...
It's great to see so much enthusiasm for this idea, and I don't want to discourage anyone, but before anyone races ahead with organisation and...
I think that is easily covered by saying someone who had PEM but now doesn't but still has some symptoms has ME/CFS that is in partial remission....
Right now in the UK asking, however nicely, for any special provision in hospital is a non starter. They are overflowing with acute infections on...
I think we need the initial couple of weeks forum wide discussion, even if it does slow things down. I could, for example, pick my favourite...
Only if they are done one at a time. We could run 2 or 3 in parallel with different writing groups. I don't think we should rush it.
We've already done that in one of our letters. They took no notice.
I agree that at some stage in each document we will need a small group to go to a private space to organise and polish a final version. I think...
The look good, but give a very brief overview and don't cover everything on the list @Jonathan Edwards just posted.
That seems like an even bigger task, as most charities have a lot of resources accumulated over the years. We have reviewed some documents...
This looks important:
I think we should go for quality rather than quantity. Focus on central issues such as defining PEM including differentiating it from other forms...
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