There's also a problem of local and national groups 'going rogue'. My local group which I haven't been involved with for years, used to employ a...
I think we need to avoid confusing two issues. Yes, it's accurate to say pwME experience brain fog. But no, that doesn't mean the cause of that...
Oh dear, I do hope it turns out not to be BPS, it's concerning that they won't reveal to you want the recommendations are yet. Well done for...
@Oni, this post from @obeat on another thread may be helpful for you. It seems very sensible to have a list of your specific needs in such brief...
I don't think the focus in this article is on the unhelpful beliefs aspect of PACE and other trials. I thought they were focusing on the fact that...
I find it refreshingly readable. I didn't notice the grammar.
There weren't any healthy controls in PACE. It was a trial of CBT, GET and Adaptive Pacing. The control group was people with only standard...
Me too. Members might not believe this, given how much I post, but I quite often delete my long incoherent rambles without posting them.
I bought both a rollator and a cheap folding wheelchair on Amazon in the UK. I haven't used the rollator, as my ME worsened sufficiently that I...
Whatever explanation they come up with is likely to be based more on their preconceived ideas about pwME/LC rather than evidence, I suspect. It...
Interesting idea. Typing speed also depends on what I'm typing about. Factors affecting my typing speed and number of corrections I need to make...
Another study of mice being made to swim to exhaustion.
Thanks for sharing your experience, @Murph. I think your description demonstrates key points about attempting to increase exercise. In ME/CFS...
Jaime Seltzer's very long thread on Bluesky is interesting. I haven't read it all yet, but whizzed through to the end where I read this: It's...
I don't see it that way. This research group led by Chris Armstrong has been researching ME/CFS biology for some years, and show a good...
I have had similar experience in my dim and distant past working life. We had one principal who set up a system for lowly lecturers like me to air...
That's fantastic, @Hoopoe. :hug:
Please don't let my definition rule anyone out, I was just attempting to summarise common features many people describe of PEM. There are likely...
I think you missed my point but I'll leave it there.
Still not clear to me, sorry. I'll try an analogy. It's the problem of a sick baby or puppy that has an untreatable disease in the sense that they...
Separate names with a comma.
