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  1. Saz94
    Post

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    And that is a COMPLETELY different thing. Jen Brea and Per Fink very clearly have completely different aims.
    Post by: Saz94, Jul 25, 2019 in forum: MEpedia
  2. Saz94
    Post

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    Yeah but that doesn't mean that hEDS and chronic Lyme are not in themselves valid diagnoses. Just because some people over-diagnose them.
    Post by: Saz94, Jul 25, 2019 in forum: MEpedia
  3. Saz94
    Post

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    I agree.
    Post by: Saz94, Jul 25, 2019 in forum: MEpedia
  4. Saz94
    Post

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    But that's not what typically happens here on S4ME. Typically, people with greater knowledge of the condition try to enlighten us, and then other...
    Post by: Saz94, Jul 25, 2019 in forum: MEpedia
  5. Saz94
    Post

    How can I persuade my dad to get a stairlift?

    Unlikely as it's a US website and so my dad won't see it as an authority as we're British and he thinks Britain is better than America (yes, he is...
    Post by: Saz94, Jul 25, 2019 in forum: Home adaptations, mobility and personal care
  6. Saz94
    Thread

    How can I persuade my dad to get a stairlift?

    I have severe ME. I live with my parents. My mum is my principal carer. Mum and I want to get a stairlift. But Dad refuses because (a) it would...
    Thread by: Saz94, Jul 25, 2019, 10 replies, in forum: Home adaptations, mobility and personal care
  7. Saz94
    Post

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    Yep.
    Post by: Saz94, Jul 25, 2019 in forum: MEpedia
  8. Saz94
    Post

    Sleep Education in Primary School Prevents Future School Refusal Behavior, 2019, Miike et al

    Hmm. "School refusal, or school avoidance, is a term used to describe the signs of anxiety a school-aged child has and his or her refusal to go to...
    Post by: Saz94, Jul 22, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Saz94
    Post

    Sleep Education in Primary School Prevents Future School Refusal Behavior, 2019, Miike et al

    But, they talk about a "late-night lifestyle"... it's actually been found that teenagers' body clocks are naturally more suited to a later...
    Post by: Saz94, Jul 22, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Saz94
    Post

    Sleep Education in Primary School Prevents Future School Refusal Behavior, 2019, Miike et al

    I was going to say oh dear, but then I remembered that during my A-Levels*, there were a couple of times when I missed school due to being...
    Post by: Saz94, Jul 22, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Saz94
    Post

    Biology for dummies

    OK. If drugs are mostly absorbed in the small intestine then how come some drugs can work very quickly? The first time I took Zopiclone, it...
    Post by: Saz94, Jul 22, 2019 in forum: Gastrointestinal and Urinary
  12. Saz94
    Post

    Biology for dummies

    Thank you wiggle
    Post by: Saz94, Jul 22, 2019 in forum: Gastrointestinal and Urinary
  13. Saz94
    Thread

    Biology for dummies

    Can someone please explain this to me in simple terms (I'm in crash, poor cognition): Are all nutrients absorbed in the small intestine or does...
    Thread by: Saz94, Jul 22, 2019, 6 replies, in forum: Gastrointestinal and Urinary
  14. Saz94
    Post

    Weird NHS ME clinic referral form

    Found it. It's loooong. A load of questions about symptoms, which I think is mostly based on Fukuda criteria. "Describe what happens if you push...
    Post by: Saz94, Jul 21, 2019 in forum: UK clinics and doctors
  15. Saz94
    Post

    Protocol Faecal microbiota transplantation (FMT) in Norwegian outpatients with mild to severe ME/CFS: protocol (...), 2024, Skjevling et al. Comeback Study

    This just shows how ridiculous the BPS approach is. A trial of CBT for MS resulted in fatigued MS patients REPORTING less fatigue than healthy...
    Post by: Saz94, Jul 20, 2019 in forum: ME/CFS research
  16. Saz94
    Post

    Weird NHS ME clinic referral form

    I actually think I do have it somewhere! Will look later. I'm so glad I never got to the point of sending it in - I definitely wrote things on...
    Post by: Saz94, Jul 20, 2019 in forum: UK clinics and doctors
  17. Saz94
    Post

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    Surely they should check beforehand what the people's levels of intestinal bacteria are like at the start. Otherwise the research is kind of...
    Post by: Saz94, Jul 20, 2019 in forum: ME/CFS research
  18. Saz94
    Thread

    Weird NHS ME clinic referral form

    I just remembered this... Last year, I was given a referral to the local NHS CFS/ME clinic. They sent me a massive questionnaire to fill out. I...
    Thread by: Saz94, Jul 20, 2019, 27 replies, in forum: UK clinics and doctors
  19. Saz94
    Post

    Help for sound sensitivity

    Do the green ones cause any pressure on the jaw? I have this problem with my current ear defenders.
    Post by: Saz94, Jul 16, 2019 in forum: Home adaptations, mobility and personal care
  20. Saz94
    Post

    Genome-wide association study identifies eight risk loci and implicates metabo-psychiatric origins for anorexia nervosa

    I know people who have or have had anorexia who would absolutely say that their thoughts and beliefs are highly involved in anorexia. - one who...
    Post by: Saz94, Jul 16, 2019 in forum: Other health news and research
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