I've scanned them. While there's a fair bit I'd argue with, they aren't aimed at ME patients. For those with very mild ME, or other conditions...
Based on I view this a bit differently. Person-centred care meaning that if the patient isn't responding as expected or the treatment is making...
Yep. That really jarred for me. It's an interesting piece but I was struck by the obvious - it is one thing to "know" about something and...
Like the others, I agree this doesn't necessarily indicate that your daughter no longer suffers PEM. The CPET is taken on 2 consecutive days but...
No. Not really. Progress is frustratingly slow but there's probably more going on now than ever before. The covid pandemic will inevitably have...
50% more than 0 is zero. Heck, 100% more than zero is still zero, isn't it? Or has the field of maths also been infected by the pandemic. Lets...
Two thoughts - 1. Surely the pandemic, with many patients left struggling in it's aftermath, makes it even more important that this inquiry...
Excuse my ignorance @chrisb, who is Ellen DeFreitas? As a relative newbie I only know some of the history pre- 1990s, probably the more...
I also don't think this potential for conflict of interest is that unusual. I know of several people whose employers sent them for assessment,...
I had a specialist A who was my ME specialist. My GP was concerned that some of my symptoms might be indicative of something else. He'd heard...
My GP, with the best intentions, really wanted an opinion from a particular doc back when I was first diagnosed. I already had the diagnosis,...
I would imagine it means being chastised, or gotten into trouble somehow. To take someone down usually means to topple them, maybe remove them...
Mine don't fit very well either - I'm pretty sure it's down to me & not the headphones. I use one of those beautician style hairbands (with the...
I have some OI symptoms - much worse when in PEM or in very hot weather.
I agree with the concerns listed. We simply don't know. I think as patients hampered & harmed by treatments based on very poor research we have a...
I don't tweet & don't have the clarity to be clear and concise (as you already know :oops:) but if I did I would love to ask - is As @Art...
Yep, I wasn't too happy with that either.
I suffered from migraines long before I got ME. My ME started moderate and then slid to severe. At first I just thought the increased...
Yep, I get that extra need for water and thirst too. I have difficulty if I eat or drink too much liquid in one go but making sure I have a ½...
Done
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