For a truly open peer review I believe that all reviewers should be prepared to be public signatories and also be prepared to have their comments...
I only use the germ brain fog when talking to a fellow pwME 'cause it's quicker /feels easier to say. Otherwise it's cognitive dysfunction or...
I think when you go down the path of specifying exclusions then there's a risk of creating more loopholes. There a fundamental problem in the...
I think eventually this will happen. Projects like DecodeME, even if they don't provide the clues we need to come up with effective treatments...
I think in the case of paediatrics it is much worse than that @rvallee. Schools and children services won't be reading up on Cochrane. No...
I agree with the above but unfortunately people also use her work to prove that what they want to believe is scientifically proven. It is a...
Nice. I think that's one of the many injustices with a diagnosis like ME where it is seen as acceptable that the medical establishment and the...
Even then I think it's possible some might experience health problems in 10, 20 years time. Like some teens who seem to recover but then ME comes...
:hug: @Simbindi. A lot of the people I met in the early years who were in relationships faced a similar issue - not necessarily the physical...
As I liked this @Andy & I know you and others have put heart & soul along with blood sweat and tears to get this off the ground, I would like to...
Eh? What have we learned? If we=patients and a handful of decent researchers who have struggles for a few crumbs of funding here and there, then...
As an adult with ME I also tried this strictly timed management business & diary approach. I suggest that anyone suggesting this approach to...
I think that would be well worth capturing. Also, perhaps, the attitude or approach patients who deteriorated or improved while under the care...
Okay. **picks jaw up off floor** You've got to wonder what's going on there. i don't doubt your word in the slightest but this man has gone on...
Not at all & I'm really glad to hear that your experience was positive. This is the kind of support that is badly needed. This is the issue as I...
£994,430......... Not even simply wasted but actively invested in making the lives of young people already disadvantaged by a great deal of...
Now they just need to get their heads around the fact that the apps were problematic, some users gave up because, despite complaining that many of...
From the quote in @Kalliope 's post above What he doesn't say is that the symptoms are usually exacerbated by the therapists fear and beliefs &...
And "pacing up". Baby steps but still very welcome to see them move in the right direction.
Yes they did some tests on that a few years back. More than the BPS crew have ever done despite claiming so many people are deconditioned and ill...
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