and the 5min snapshot from 'a professional' somehow counting for more than someone else seeing 24/7 - which is where the illness becomes...
Good description on that aspect in last para. There's the 'past limit' as well as PEM in the delayed sense (and various different types of this)...
PEM also seems to operate on a big old cycle - you've flared something up like a big allergy or nasty acute illness has those feelings of 'I know...
Yes it is distinctive - one issue/curiosity is whether it is distinctive in the same way across all with ME. I think the PEM tells us a lot - it...
Yes, fatiguability is the 'universal', given how people will have to tenaciously manage things and many use the 'wired/adrenaline' to get through...
Flu is an interesting example. In the UK an anaology commonly used (I'm sure by TV doctors over the years, and probably real ones as well as...
Do you mean something along the lines of what is discussed in the following?:...
What is really confusing - and has just struck me (for some reason I never pictured this before) - is that if the history is as I have read it you...
A self-imposed Truman Show
So many 'only illness that their one treament can't benefit' you'd think people would cotton on to how many they've said this about
Yep. Doesn't feel 'research-led' or 'science-led' (certainly not in the observation sense) or 'guideline led'. More like they feel they have to...
Would be interesting to see what the critique was. On a side note I looked up the 'Clark et al (2019)' that is quoted at the very start in...
From my experience this is starting to sound spookily close
When you compare all this (and the measuring on a subjective fatigue scale, rather than 'how ill are you' and whether PEM/PESE is elicited) to...
I think that is a good summary of my thoughts. I'm not ready to assume credit is due to good things for the name change - although it would be...
100% agree. COme to Jesus moment happens and they haven't blinked an eyelid before or after when being the most close to 'doing the problem...
It will be insightful then to see whether they choose their front page image to be more representative of/appropriate to the illness than what...
Yikes, just read the following in the 'Positive Psychology' para of the FitzDonald-Davies et all (2020) paper discussed on s4me here Is it just...
"and even bed-ridden" !! says it all really. I'd guess even mild people would say that being 'bed-ridden' more often than they should be, for...
Yes the software/hardware analogy is really bad. We all know brains are neural networks for a start, so not like computers at all but social...
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