Indeed, and if you are working by things like Heart rate and input into phone apps which is then aggregated across large numbers then the privacy...
Agreed I think we have to get our head around the fact that if someone using good methodology (Workwell, physiosforME have shown much better...
Well said, they need to sort out a good vocab desperately. Baseline even in the context it is used 'right' for ME is actually the complete...
As a side question to all that your point about "be careful about referring to mild": I've seen it written here that the mild, moderate etc might...
Good point - I read it differently. One thing would be that it would give 'official back-up' to some pretty outrageous to others claims of how...
Agreed. Although of course the issue with local groups is the energy-limiting nature of the condition combined with lack of support meaning there...
We have an issue where subject-areas need to be open-minded that just because their expertise is the key to unravelling the issue, it doesn't...
This bunch is brilliant. I'd like to put on their agenda that I'd hope they might use their techniques and approach and curiosity to look into...
He is right. This is precisely what is needed - better measures meaning that research 'gets to the right point'. And for the condition to be...
Indeed and agreed -an 'act normal' focus over its impact on actual health, short term pat on back for Crawley getting presenteeism as a...
Picking out this quote you mentioned from a specialist medical professional: "“It's often school that's the issue because I see so many [children]...
I can see ways in which it could be - imagine being off work with something you need to rest to recover from; that's hard to do and not stress...
Was about to say the same: "Liaison between healthcare and schools is important for recovery from ME/CFS." is the big red flag. If they can't...
Thank you. It makes sense as a back-up for when you've run out of cognitive ability and 'given it a go' in good faith in a non-emergency setting...
The thing is that these are both correct. That is a scary and inappropriate situation to exist. Most healthy people could not accept a situation...
Agreed - I'm not sure that is what was in place in Cornwall, or on what basis but my probable misreading of it inspired me a bit. And it is...
I remember reading a Job Description (might have been historical) for Cornwall (ironic given I'm not sure what that ME/CFS clinic is like...
I think the splitting of the spectrum was the most important move BPS did. Mild they call invisible but really it’s ‘don’t acknowledge’ the...
Personally, I think we need to be lobbying for something that is 'in the system' - a safety officer (someone mentioned Ryan's law in Australia)...
I know little about this, but that still sounds low as a minimum to me. At least it is 12 higher than the women I guess. How does that reference...
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