I think we need to know there will be some independent oversight of the medical impact for those participating. So that anyone who experiences...
Which will skew their perception even further. They've clearly underestimated how brutal ME is given their conception that 25mins at 70%HR is...
Not sure that if they are recruiting people who actually have ME anyone would be able to actually complete it either. I hope that their criteria...
I'm intrigued by this question - he seems to be looking into a lot of possibilities. It would be good to know his background, I don't doubt his...
I could only do bits and focused on skipping through the diagnostic to the management part so far. I only half paid attention on the questions bit...
Comments are now closed on it but how extraordinary to have an early on link saying 'evidence suggests' that leads to a paper that says 'the...
Kate Garraway's husband had severe covid and not a head injury. Are you mentioning him because he is being pu through rehab? - I ask as I have no...
I attach a link to the job description from the Cornwall ME/CFS that was advertised a few years ago:...
And how is he defining and assessing what is and isn't 'attention dependent' without context or understanding of the condition itself? Ie someone...
Hoorah yes that is the one!
Is this gent kidding in his methodology, it sounds like a spoof or parody or Monty Python sketch for someone claiming their labels they give...
I'm assuming someone else has already mentioned the following NIHR funded Biomedical research centre at 'SLam' ie Kings+Maudsley?:...
You have a point. Reading the following article written by her seemed to certainly elicit some responses along those lines - excluding the ones...
That is interesting that what is being said is that the guidelines doesn't cover severe. I have heard of a number of people in the last few...
Yeah well I'm sort of not surprised. Certain people will twist anything. I guess that the SEID name, whilst accurate was an issue because some of...
I may have misheard but something in passing/rumour seemed to be someone suggesting that where areas didn't have an ME/CFS service then people...
Yes I was a bit 'gulp' for a moment when I saw that idea that anyone could avoid PEM just with pacing. It almost felt like it was said as if it...
Fair point. However I also know that as prior to ME I was an athlete then I would have seemed 'fitter' than most peers even when actually...
the straps of the topper go round the corners of the mattress from on top of the mattress so no easy 'pinning' way. The toppers aren't sturdy...
agree that the more rest the better your sleep. That is why I find the sleep hygeine stuff so devious and misinformed and misleading. worse thing...
Separate names with a comma.