this. I have had people suggest that I cannot possibly be as ill as I & my carer report me to be, because if I *were literally unable to stand...
Wow talk about starting the gaslighting early, it's on the first page! So if the person ends up worse instead, because of your misguided...
How are you doing @debored13 ? I hope you're managing to stay warm
ahh, yes, so that then puts the onus on them to prove objective benefit? crikey, I can see how our arguments have been so easy to dismantle &...
Thanks @Jonathan Edwards I think I'm beginning to see the complexity. So patients saying ''X' makes me feel worse", actually can be seen as not...
yes I know just what you mean Kitty Precisely Barry, that's why I cringe every time Dr Shepherd says it (brilliant as he is at so much for us) I...
this
agreed. That's why the MEA's description of 'exercise induced muscle fatigue' in their 'what is ME?' information, is so unhelpful imo... because...
such a good idea Trish It's a bummer. But perhaps we need to rephrase what we say so that instead of saying 'causes harm'.... I just considered...
Thanks for that @Lisa108 I'm way too foggy to even read the whole paper, but I managed the Conclusions. But i still cant really make head or...
Am hugely appreciative of all the hard work our representatives are doing. But i'm afraid i'm with @Esther12 - i'm not expecting much of an...
The sci-hub link no longer works, after so long thats not surprising but I cant really tell what they're saying from the abstract, not sure how to...
Every morning without fail I have an amount approx the size of an almond of brown or yellow phlegm. I have to spend a few mins clearing it, it's...
A huge well done thank you to Elizabeth for sharing her story. It's so very sad, and angering, to hear about what happened to her. Unfortunately...
they are so thick honestly. It's cumulative... the activity threshold for triggering PEM is CUMULATIVE. He did a lot more phsycially so could so a...
Yes I sure it is. But I find that extremely irritating because these small signs can be clues. me too, & these started around the same time as the...
LOL neither do I! But when it smells strong you dont have to actively 'smell' it, it wafts up at you out of the bowl. Ugh sorry that's a bit TMI...
Yes my pee absolutely stinks when I am bad. Not the same regular urine smell but stronger, but just i dont know, nasty & 'not right'. I do get...
Yes I found that offensive too. With the implication that those that don't get better simply don't want to change. It's all in the patient they...
At the end of the survey, revealing all the flaws... they then contradict themselves by 67% of them saying the think they are providing good care!
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