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  1. JemPD
    Post

    The BDS checklist as measure of illness severity: a cross-sectional cohort study...., 2020, Fink et al

    thnks @Andy
    Post by: JemPD, Dec 13, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. JemPD
    Post

    The BDS checklist as measure of illness severity: a cross-sectional cohort study...., 2020, Fink et al

    I meant that more literally @Andy ie does anyone know what the checklist actually is - ie a link to it, or know what is on it?
    Post by: JemPD, Dec 12, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. JemPD
    Post

    The BDS checklist as measure of illness severity: a cross-sectional cohort study...., 2020, Fink et al

    what is the 'BDS checklist'?
    Post by: JemPD, Dec 12, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. JemPD
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    absolutely. I also frankly find it frustrating when people talk about 'difficulty concentrating' because that is something i experience when...
    Post by: JemPD, Dec 12, 2020 in forum: Long Covid news
  5. JemPD
    Post

    Who is Simon Wessely?

    thanks for that @Barry I didnt write that quite accurately then as there is ambiguity. But IIRC when i was reading about it all (circa 2006) it...
    Post by: JemPD, Dec 11, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. JemPD
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    fantastic Natalie :) thnks
    Post by: JemPD, Dec 8, 2020 in forum: Advocacy Projects and Campaigns
  7. JemPD
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    MArvellous as it is @Natalie :) but just a suggested change (in blue) As i'm sure you're only too well aware, many well meaning Drs/care givers...
    Post by: JemPD, Dec 7, 2020 in forum: Advocacy Projects and Campaigns
  8. JemPD
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I couldnt agree more
    Post by: JemPD, Nov 30, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  9. JemPD
    Post

    DecodeME - UK ME/CFS DNA study underway

    Great, thanks, thats good enough for me :)
    Post by: JemPD, Nov 30, 2020 in forum: ME/CFS research news
  10. JemPD
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Also just to say that i got the bose in- ear ones as well and they are not nearly as good, they also made me feel very dizzy & sick & gave me a...
    Post by: JemPD, Nov 30, 2020 in forum: Hypersensitivity and Intolerance Reactions
  11. JemPD
    Post

    DecodeME - UK ME/CFS DNA study underway

    I was initially a bit concerned by this development.... Are you happy with this @Andy ?
    Post by: JemPD, Nov 30, 2020 in forum: ME/CFS research news
  12. JemPD
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Smart Noise Cancelling Headphones 700 | Bose mine are these they are fantastic, but pretty pricey at £350there is a 90 day satisfaction guarantee...
    Post by: JemPD, Nov 30, 2020 in forum: Hypersensitivity and Intolerance Reactions
  13. JemPD
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I came here to say just exactly this :) I'd hoped to get a bit further but am sliding down the wall. Huge thanks to everyone involved.
    Post by: JemPD, Nov 26, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  14. JemPD
    Post

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    Hi Woolie not sure whether the statement you hate is my statement or whats implied in the study. So just to clarify i am not suggesting that any...
    Post by: JemPD, Nov 26, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. JemPD
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    My main issue with it, apart from the issues you raised, was her repeated use of the advice to 'be selfish' as if self care were selfishness,...
    Post by: JemPD, Nov 26, 2020 in forum: Long Covid news
  16. JemPD
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Oh dear. Video on BBC news website this morning Long Covid: How knowledge of ME could help sufferers - BBC News Woman looking fabulous...
    Post by: JemPD, Nov 26, 2020 in forum: Long Covid news
  17. JemPD
    Post

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    This
    Post by: JemPD, Nov 23, 2020 in forum: General ME/CFS news
  18. JemPD
    Post

    BPS attempts at psychologizing Long Covid

    From the blog It would be more accurate to say that patients & professionals convinced NICE to look at the evidence for GET in an unbiased...
    Post by: JemPD, Nov 22, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. JemPD
    Post

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    This. From all the nonsense in her book TC seems to honestly believe that CFs = feeling very tired & sleepy, and a bit achy, and generally...
    Post by: JemPD, Nov 22, 2020 in forum: General ME/CFS news
  20. JemPD
    Post

    "No More Mr NICE Guy…" by Prof. Brian Hughes

    Indeed & the worst of it is that they kid themselves that they are the ones being supremely ethical & with our best interests at heart. They...
    Post by: JemPD, Nov 21, 2020 in forum: General ME/CFS news
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