Sci hub link not working - goes to a different study?
Hi @Natalie yes i have seen that and thought how wonderful it was, gorgeous drawing.
Cant wait to watch it. @Natalie these videos are amazing. Just to let you know that the severe ME one helped me recently in a discussion with my...
What a *$!!*@$! I'm pretty sure we could - lol maybe should - put together a list of idiotic, patronising and downright insulting/abusive things...
i take occasional diphenhydramine & doxylamine succinate (both anti histamines) I find the latter almost miraculous & even the former will make me...
a great & hard won achievement well done & huge thanks
Exactly. They have spent the best part of 40yrs erroneously shaming PwME for supposedly wanting to 'adopt the sick role' for some kind of...
All that quote says is that she wants to leave behind is the label of ME & the crap that goes with it. If they had asked the patient 'if you had...
very disappointing that even Maureen Hanson doesnt know that palpitations, tinnitus, chest pain, persistent cough, are not uncommon in ME...
Thinking of you all hoping the bits that unhelpful can be improved, gosh there's a lot going on at the moment!
I agree. I'd be flat out astonished if they werent.
Ok thanks @Trish huge thanks to all the committee & to everyone working on it, i am soooo glad to be part of a group that producing what i know...
Is there a time line for this more detailed than 'as soon as possible'? I know there is a deadline for submitting responses to NICE, but i have a...
My concerns in a nutshell. I do hope people are not being too triumphalistic on social media... it aint published yet.
Ahhh, i read that article 3 times never noticed her even being included never mind saying that sorry @Esther12 :oops: I am clearly too muzzy...
What AfME quotes? Do you mean the ones from Miller? My bolding.
This i must have missed that, do you recall where can i find it? sorry if it's obvious i not well today struggling to keep up. In general i...
My sentiments entirely Mij, I'm not anti-vax by any stretch of the imagination, but anyone who just takes their word for it is a bit naive iyam....
Yes. I have a very pessimistic view I'm afraid, & will just be relieved if despite everyone's hard work it's not essentially the same as before...
totally, totally with you on that.
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