Thanks, @Tao Fogger, that helps a lot. It looks as if B&W hadn't picked up the most relevant part of the guideline for pwME, which is the second...
Great work, @Murph and @chillier! For anyone who doesn't know what nitrogen homeostasis is, here's a bare bones explanation I found on BBC...
Thanks, I'd forgotten all about that thread!
Comments often aren't enabled on controversial topics, specially where individuals are named. George's article will have passed legal checks, but...
I have some worries about conditions being named, to be honest. DWP assessments have always been about how impairments and disabling illnesses...
I just looked, and plenty of people have already. :thumbsup:
Doesn't take any prisoners, does she! :laugh: Marvellous.
They may also want to offer feedback about things it would be useful for pwME to know. We can spot dubious research, but we don't always have a...
No, but it's fantastic that the course is being prepared, even if the race isn't yet under way. :thumbup:
It's a process, too, the good ones are still listening and learning. And it should be clear that any guidelines are collaborative both ways, and...
Why not? Researchers do the best they can manage, the best they can get funded, or the best they can get away with. When it's pointed out that a...
I don't think it would include all scientists, and nor do I see it as un-useful. Those who roll their eyes at the idea of patient involvement...
Yup. And the protocols for major projects should be subject to a patient ethics approval committee (comprising individuals as well as...
They seem to understand a great deal, which is good. I've still got concerns about talk of rehabilitation, though, at whatever pace and with...
I can actually see a use for a measure. Keeping a score from week to week might help more recently diagnosed people work out whether they're on an...
For me at least, it's the wrong time interval too. The vast majority of my variation is day to day, not fortnight to fortnight.
I don't know anything about the subject, but I'm sorry to hear about your mum-in-law. I hope she makes a good recovery.
I agree—it won't be viewed as egregious enough to engage misconduct procedures or funding withdrawals. The best approach is to do what people are...
I'm not even sure there's proper justification for putting 66 people through this procedure (or a mockup of it) as part of a trial. Filtering...
Yes, mine's always been the same too. Oddly, the severity of PEM symptoms doesn't change nearly as much as the threshold for triggering them.
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