The draft report is only available in Finnish, unfortunately. It probably deserves its own thread, so I made one here:...
STM, the Ministry of Social Affairs and health in Finland, has published a draft report on the planned care plan/guidelines for our disease. Only...
I don't have any solutions, I'm afraid :) But I believe a great point to start from would be to have laser-focus on the few things that we all...
Ekuriren: Kunskap om kronisk trötthet för låg https://www.ekuriren.se/nyheter-fran-tt/kunskap-om-kronisk-trotthet-for-lag/ Google Translate,...
I'd like to add that I believe our activism has to be very well thought-out, carefully aimed, based on solid facts & evidence, and with a good...
Svenska Dagbladet: Strandhäll: Kunskap om kronisk trötthet för låg https://www.svd.se/kunskap-om-kronisk-trotthet-for-lag Google Translate,...
Personally, I'm not sure what to think about this... Could go either way, I guess? I've read some of the drafts of the regional "healthcare...
Yes :( The draft version of STM's (the Ministry of Social Affairs and health) report on the planned new guidelines seem to be based on Fink's...
Annika Strandhäll, minister of social affairs [MEDIA]
Sorry you're having trouble accessing Google Translate. What does does it say in Swedish? No, you don't have to log in. They don't however allow...
Regeringen: Mer kunskap behövs för bättre stöd till personer med kroniskt trötthetssyndrom...
Three articles in Aftonbladet (Sweden) today: Camilla var sjuk i ME/CFS – reste utomlands för att avsluta sitt liv...
https://sv.wikipedia.org/wiki/Finn_Bengtsson https://twitter.com/finnbengtsson https://finnbengtsson.wordpress.com/...
The term/concept central sensitivity syndromes is used in this proposition to the Swedish government too :( Reading comments by pwme and their...
"Due to a large amount of referrals and longer waiting times, we will not be accepting new referrals between 1 May and 31 August. The estimated...
Linköping Universitet: Nya rön kring kroniskt trötthetssyndrom https://liu.se/nyhet/nya-ron-kring-kroniskt-trotthetssyndrom Google Translate,...
Another similar common view, at least among Swedish neurologists, is to describe ME as a "cultural manifestation/expression" (kulturyttring) ......
Still 'No' for me.
I voted 'No'. To me the term "environmental illness" has the same vibes as "central senstivity" in relation to ME: a completely different meaning...
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