I've tried to summarize the information in this thread in a blog post:...
Thanks for the suggestion. The sentence has become quite complicated though. What about : "The XMRV-saga and the more recent enthusiasm about...
I still have some trouble with this sentence. What about: .... "when promising but preliminary findings are misinterpreted?" I think I will leave...
I would say well done by Nina E. Steinkopf, although I do not know all the details of this. I admit that I haven't read up with everything on...
Thanks for the suggestions @Ravn. I don't know how @Medfeb sees it, but I suspect our views on this matter might simply be too different. So I...
I don't use the term scientific as a synonym for good, valid or reliable. I use it to refer to the scientific method involving experimenting,...
There's a study by Jason which uses patient samples from Newcastle and Norway and online patients, where approximately a quarter (23, 8%) was...
I've inserted this version ("..assumed to be correct") in the text. Thanks for your help.
Thanks for the suggestion. This does give the impression that it's desperate patients that form the problem, while the issue that I want to...
Ok. But the things I propose do not forbid sharing or giving information about expert advise, as long as the evidence behind it is not overstated...
Apparently, the term compassionate care refers to medical and emotional care for patients with terminal diseases. So that may not be the right...
Wow! Thanks to everyone who made this possible! Advocacy seems to be growing in Germany. I hope the situation will improve there.
:thumbup: I've inserted it in the text.
I agree it's not specific enough to describe a treatment in a scientific paper, where the term should probably not be used in a general sense...
To clarify: this text presented above is not a proposal to form an official S4ME response (it would be weird for one organization to say what...
Thanks for the suggestions Ravn! I'll go with effective care, let me know if you prefer another term. I'll indicate changes in the text in red....
Thanks for your response. Could you give an example of something ME Action might want to do that would be in conflict with the principles I...
Although I think you make valuable points, I would prefer separating them. Changing MEpedia's editorial policy and determining what directors...
It seems that I got the word 'factfulness' from the late Hans Rosling, who defined it as "The stress-reducing habit of only carrying opinions for...
I've worked out a proposal. Be mindful that this is just a first draft, it might need some changes. The idea is to work on this with others here...
Separate names with a comma.
