Response to the article and statements by Kinderman: Why Psychiatric Diagnosis Matters. Despite recent claims, diagnosis in psychiatry is...
The feasibility publication of the SMILE trial writes: "The authors would like to thank Professor Jonathan Sterne who provided trial methodology...
Assessment of risk of bias is regarded as an essential component of a systematic review on the effects of an intervention. The most commonly used...
Thank you so much Tom!
Does anyone have a digital copy of "National Task Force on Chronic Fatigue Syndrome, Post Viral Fatigue Syndrome, Myalgic Encephalomyelitis....
Thanks for sharing your story @Arnie Pye
I've tried to rephrase the text a little in accordance with my own view and what has been said and commented. I apologise in advance to Andy if...
Yes. I prefer to make a distinction between the (muscle) fatiguability which is short term and PEM which is more like a payback mechanism over a...
Ok. I was thinking of a thread that starts with post number 8 (your text) and includes the other posts until post 19 (which is where you suggest...
Ok, sorry. I might have misinterpreted. Your text, using the term SEL, was quite thought-provoking. Perhaps moderators could duplicate the posts...
I would like to add a short note to this discussion. Because PEM is now often regarded as the most characteristic symptom of ME/CFS, debate about...
Yeah sort of. There might be some ambiguity because one could argue that PEM is not unique to ME but that it is simply a consequence of going...
I think this is great Andy! Very well explained. Perhaps you could add after this sentence that it's not only that ME patients have a lower SEL,...
It is unfortunate that the study doesn't say how many of the 97 interviewed healthcare professionals provided care for ME/CFS patients (or did I...
These were the powerful words from Karim Khan, Scientific Director of the CIHR Institute of Musculoskeletal Health & Arthritis (IMHA). I've...
The GET group did a little better on the 6mwt. One possibility is that this patient group learned to push through and did more effort to increase...
Other suggestions Collaboration with EDS and POTS research There needs to be more collaboration between ME researchers and other specialty...
Diagnostic criteria and questionnaires Stricter diagnostic criteria The absolutely essential first thing to advance research at the NIH and...
How to get more patients into studies Social media campaign to attract participants for studies I would suggest social media campaigns as...
Collecting more data Lack of longitudinal data ME/CFS also needs more up to date longitudinal data. I have been sick for 23 years, and I have no...
Separate names with a comma.
