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  1. ME/CFS Skeptic
    Post

    Bias due to a lack of blinding: a discussion

    There's a third option, mentioned by the authors, namely a lack of precision. The previous studies of this kind did find an effect for blinding...
    Post by: ME/CFS Skeptic, Jan 30, 2020 in forum: Trial design including bias, placebo effect
  2. ME/CFS Skeptic
    Post

    #MEawarenesshour every wednesday on twitter

    Hmm, yes I could see the image posted. Tried something else - hope it works for you now.
    Post by: ME/CFS Skeptic, Jan 30, 2020 in forum: General Advocacy Discussions
  3. ME/CFS Skeptic
    Post

    #MEawarenesshour every wednesday on twitter

    We did a little better than last week. For a brief moment in time, we were more popular than love island in the UK. [ATTACH]
    Post by: ME/CFS Skeptic, Jan 29, 2020 in forum: General Advocacy Discussions
  4. ME/CFS Skeptic
    Post

    #MEawarenesshour every wednesday on twitter

    It’s MEawarenesshour tonight at 8 PM London time. Hope you can all join us. Some patients counted the number of tweets per MEawarenesshour and it...
    Post by: ME/CFS Skeptic, Jan 29, 2020 in forum: General Advocacy Discussions
  5. ME/CFS Skeptic
    Post

    Bias due to a lack of blinding: a discussion

    He previously defended the PACE trial on Twitter, when the HRA-report came out. [MEDIA]
    Post by: ME/CFS Skeptic, Jan 28, 2020 in forum: Trial design including bias, placebo effect
  6. ME/CFS Skeptic
    Post

    Bias due to a lack of blinding: a discussion

    Thought this was interesting. [MEDIA] [MEDIA] [MEDIA]
    Post by: ME/CFS Skeptic, Jan 28, 2020 in forum: Trial design including bias, placebo effect
  7. ME/CFS Skeptic
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    Thanks @Dolphin !
    Post by: ME/CFS Skeptic, Jan 28, 2020 in forum: ME/CFS research news
  8. ME/CFS Skeptic
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    Really? That's quite shocking, to be honest. Do you happen to have a link/source for this? I thought an exclusion had to be something that can...
    Post by: ME/CFS Skeptic, Jan 28, 2020 in forum: ME/CFS research news
  9. ME/CFS Skeptic
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    If fulfilment of three case definitions was a requirement to get a ME/CFS diagnosis in this study, we would also expect lower figures than...
    Post by: ME/CFS Skeptic, Jan 28, 2020 in forum: ME/CFS research news
  10. ME/CFS Skeptic
    Post

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    Byron Hyde is not an author of the ICC but someone who is often referenced by patients who protest against the use of the term ME/CFS. I noticed...
    Post by: ME/CFS Skeptic, Jan 27, 2020 in forum: General ME/CFS news
  11. ME/CFS Skeptic
    Post

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    Thanks to Tom Kindlon for pointing this out. I've made a twitter thread on a related issue, as many patients who harshly disagree with the use of...
    Post by: ME/CFS Skeptic, Jan 27, 2020 in forum: General ME/CFS news
  12. ME/CFS Skeptic
    Post

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    Yes, a couple of days ago they published a paper on the health-related quality of life of 400 patients seen in their clinic from 2014 to 2018....
    Post by: ME/CFS Skeptic, Jan 27, 2020 in forum: General ME/CFS news
  13. ME/CFS Skeptic
    Post

    Bias due to a lack of blinding: a discussion

    I realize you're being sarcastic but in essence, I'm not asking for 'further info' but basic info about their methodology that probably should...
    Post by: ME/CFS Skeptic, Jan 26, 2020 in forum: Trial design including bias, placebo effect
  14. ME/CFS Skeptic
    Post

    Bias due to a lack of blinding: a discussion

    The supplementary material does give the total figures for each blinding assessment: Definitely no - 16 Definitely yes - 15 Probably no - 73...
    Post by: ME/CFS Skeptic, Jan 26, 2020 in forum: Trial design including bias, placebo effect
  15. ME/CFS Skeptic
    Post

    Bias due to a lack of blinding: a discussion

    @Esther12 The authors of the BMJ study selected trials from each Cochrane review for their comparison, they didn't use all of them. They said they...
    Post by: ME/CFS Skeptic, Jan 26, 2020 in forum: Trial design including bias, placebo effect
  16. ME/CFS Skeptic
    Post

    Chronic Lyme Disease: a discussion of the epidemiological data

    Ok. Are there any epidemiological studies from before 1983 I should take a look at?
    Post by: ME/CFS Skeptic, Jan 25, 2020 in forum: Infections: Lyme, Candida, EBV ...
  17. ME/CFS Skeptic
    Post

    Chronic Lyme Disease: a discussion of the epidemiological data

    Any chance you could invite Sandra Pearson to have a look at this thread? Or does anyone else know smart Lyme advocates who know the literature...
    Post by: ME/CFS Skeptic, Jan 25, 2020 in forum: Infections: Lyme, Candida, EBV ...
  18. ME/CFS Skeptic
    Post

    Chronic Lyme Disease: a discussion of the epidemiological data

    Yes, thank you. But I'm mostly confused by the scores. The text says "the Lyme group had lower global health status scores compared with...
    Post by: ME/CFS Skeptic, Jan 25, 2020 in forum: Infections: Lyme, Candida, EBV ...
  19. ME/CFS Skeptic
    Post

    Chronic Lyme Disease: a discussion of the epidemiological data

    I realize that this is a controversial issue and it's certainly not my intention to throw oil on a fire. I hoped that a focus solely on...
    Post by: ME/CFS Skeptic, Jan 25, 2020 in forum: Infections: Lyme, Candida, EBV ...
  20. ME/CFS Skeptic
    Post

    Chronic Lyme Disease: a discussion of the epidemiological data

    References [1] Rebman AW, Bechtold KT, Yang T, Mihm EA, Soloski MJ, Novak CB, et al. The Clinical, Symptom, and Quality-of-Life Characterization...
    Post by: ME/CFS Skeptic, Jan 24, 2020 in forum: Infections: Lyme, Candida, EBV ...
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