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  1. ME/CFS Skeptic
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    There is a longer statement by the ME Association about the interview on their website:...
    Post by: ME/CFS Skeptic, Jul 29, 2019 in forum: General Advocacy Discussions
  2. ME/CFS Skeptic
    Post

    The PACE trial video series by A Broken Battery

    This looks great @Adam pwme ! Must have been lots of hard work. Just one minor remark. "Recovery was lowered to a level similar to patients with...
    Post by: ME/CFS Skeptic, Jul 29, 2019 in forum: Advocacy Projects and Campaigns
  3. ME/CFS Skeptic
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    That might explain why I had the impression that what Shepherd was saying was mostly beside the point: about biomedical research, WHO classifying...
    Post by: ME/CFS Skeptic, Jul 29, 2019 in forum: General Advocacy Discussions
  4. ME/CFS Skeptic
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Don't think this the core of the issue to be honest. If a treatment like CBT or GET was crafted a little better as a convincing placebo than it...
    Post by: ME/CFS Skeptic, Jul 29, 2019 in forum: General ME/CFS news
  5. ME/CFS Skeptic
    Post

    Who is Simon Wessely?

    Thanks @Eagles ! Having listened to the interview, I find the quote to be less controversial than I imagined it at first. I suspect there isn't...
    Post by: ME/CFS Skeptic, Jul 29, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. ME/CFS Skeptic
    Post

    Who is Simon Wessely?

    I'm also interested.
    Post by: ME/CFS Skeptic, Jul 29, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  7. ME/CFS Skeptic
    Post

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    A feasibilectiveness study.
    Post by: ME/CFS Skeptic, Jul 28, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. ME/CFS Skeptic
    Post

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    Geraghty wrote: I was confused by that as well, and don't quite get why they call it a feasibility study when it seems like a full intervention...
    Post by: ME/CFS Skeptic, Jul 28, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. ME/CFS Skeptic
    Post

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    They responded:
    Post by: ME/CFS Skeptic, Jul 28, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. ME/CFS Skeptic
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Are comments possible to this article? I agree that a comment by someone like Jonathan Edwards would be helpful, but it would do little to change...
    Post by: ME/CFS Skeptic, Jul 28, 2019 in forum: General Advocacy Discussions
  11. ME/CFS Skeptic
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    My brief comments on some of what is said in the article: "The trial became the subject of controversy for several reasons. One is that it looked...
    Post by: ME/CFS Skeptic, Jul 28, 2019 in forum: General Advocacy Discussions
  12. ME/CFS Skeptic
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    This is awful. Comments are not possible or am I missing something? He must be an activist then. Who else would read medical papers looking...
    Post by: ME/CFS Skeptic, Jul 28, 2019 in forum: General Advocacy Discussions
  13. ME/CFS Skeptic
    Post

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    No response by the authors yet, but I just noticed that another reply has come up by Jemel Aguilar (@aguilarj2). It's called "Adapting to living...
    Post by: ME/CFS Skeptic, Jul 27, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. ME/CFS Skeptic
    Post

    The IDO Metabolic Trap Hypothesis for the Etiology of ME/CFS 2019 Kashi, Davis, Phair.

    Ok, but the idea of bistability and a trap is presented as one of only two reasons why the described pathological mechanisms would have anything...
    Post by: ME/CFS Skeptic, Jul 26, 2019 in forum: ME/CFS research
  15. ME/CFS Skeptic
    Post

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    Might it be this paper: The Relationship Between Hypermobile Ehlers-Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), and...
    Post by: ME/CFS Skeptic, Jul 26, 2019 in forum: MEpedia
  16. ME/CFS Skeptic
    Post

    Possible Source of Post-Lyme Complications Is Revealed

    yes (but I did use the term suggesting...). It's certainly possible that this is only part of the mechanism of what is causing the problem. I...
    Post by: ME/CFS Skeptic, Jul 26, 2019 in forum: 'Conditions related to ME/CFS' news and research
  17. ME/CFS Skeptic
    Post

    The IDO Metabolic Trap Hypothesis for the Etiology of ME/CFS 2019 Kashi, Davis, Phair.

    Thanks. Yet I still don't see what the connection is between bistability and ME/CFS. The paper only says about this: "Some ME/CFS patients...
    Post by: ME/CFS Skeptic, Jul 26, 2019 in forum: ME/CFS research
  18. ME/CFS Skeptic
    Post

    Possible Source of Post-Lyme Complications Is Revealed

    Tagging some smart people, in case they've missed this. I'm curious whether my excitement about this study is justified or not. @Jonathan...
    Post by: ME/CFS Skeptic, Jul 26, 2019 in forum: 'Conditions related to ME/CFS' news and research
  19. ME/CFS Skeptic
    Post

    Possible Source of Post-Lyme Complications Is Revealed

    This looks huge. If confirmed, perhaps this could be a major breakthrough. If I understand correctly, they focused on peptidoglycan (PG), an...
    Post by: ME/CFS Skeptic, Jul 26, 2019 in forum: 'Conditions related to ME/CFS' news and research
  20. ME/CFS Skeptic
    Post

    The IDO Metabolic Trap Hypothesis for the Etiology of ME/CFS 2019 Kashi, Davis, Phair.

    Thanks to Robert Phair for providing us with an interesting and testable hypothesis. Just not sure about some of the assumptions. It begins for...
    Post by: ME/CFS Skeptic, Jul 26, 2019 in forum: ME/CFS research
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