Beautiful and very touching:
From scanning the reviews, some of them had conclusions that didn't seem very robust. For example, based on a small number of studies with small...
Should we try to promote the survey, so that UK patients in the online community get a say as well? Made a screenshot of the question, just in...
With all the respect, but I didn't mean to suggest that hypermobility is presented as the cause of hEDS symptoms, no more than postural...
I strongly disagree. IMHO we should be able to discuss all science and diagnoses should form no exception to this. We should be able to criticize...
I had a quick look at reviews of exercise studies in various illnesses. It seems that there are plenty of studies that did find improvements on...
Perhaps @dave30th nows some references as well. I remember reading this 2015 article by you: "Renewed Prescriptions For An Old Remedy: Physical...
I was thinking, if this finding would turn out to be true, perhaps it tells us something about the heterogeneity of ME/CFS. If a predominance of...
Good question. I would be interested in such studies as well. My impression is that they are rare, even in other fields than ME/CFS.
Would it be worth it writing a response? I briefly wrote down my thoughts but not really in-depth. Perhaps others could add arguments and...
Just read the study and can't make much sense of it either. Also: it seems to be the middle group, the moderately affected who show the largest...
Short summary: The letter is about a large Norwegian study that followed up on adolescents with an Epstein-Barr virus (EBV) infection. The study...
I've submitted a comment on this study and it has now been published. You can read it for free using this Share Link:...
Sorry I meant Friedberg and the actimeter studies he did: Friedberg, F. Does graded activity increase activity? A case study of chronic fatigue...
It's a shame because the platform seems like a really useful tool to collect reliable information and set the record straight on ME/CFS. It's for...
Good question. Here in Belgium, De Meirleir was involved and made a diagnostic test about it. It was a big deal around 15 years ago. My guess is...
They go into the active versus passive group in this publication: Bazelmans E, Prins J, Bleijenberg G. Cognitive Behavior Therapy for Relatively...
Social media summary: The first results of the MAGENTA trial have been published; the trail that aims to test graded exercise therapy and...
My comment on this paper has no been published as a rapid response on the website: https://bmjpaedsopen.bmj.com/content/3/1/e000425.responses
It would be rather strange if they didn't look at any outcome data. Isn't it part of the feasibility trial to see if they can collect the outcome...
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