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  1. ME/CFS Skeptic
    Post

    Introducing #MEAction’s 2019 ME Research Summary

    Regarding the 2day CPET procedure: I don't know if this is true: I don't think we know yet if the abnormalities on the 2day CPET (mostly reduced...
    Post by: ME/CFS Skeptic, Jun 13, 2019 in forum: Advocacy Projects and Campaigns
  2. ME/CFS Skeptic
    Post

    Introducing #MEAction’s 2019 ME Research Summary

    Another example is the reference to the studies by the Lights on gene expression after exercise. As I understand it, attempts to replicate these...
    Post by: ME/CFS Skeptic, Jun 13, 2019 in forum: Advocacy Projects and Campaigns
  3. ME/CFS Skeptic
    Thread

    Blood volume and red blood cell volume in ME/CFS

    This post and others on the thread have been copied or moved from this thread on MEAction Research Summary 2019 One example: The ME Action...
    Thread by: ME/CFS Skeptic, Jun 13, 2019, 7 replies, in forum: ME/CFS research
  4. ME/CFS Skeptic
    Post

    Introducing #MEAction’s 2019 ME Research Summary

    This post and others from this thread have been copied or moved to a new thread here One example: The ME Action research summary suggests that a...
    Post by: ME/CFS Skeptic, Jun 13, 2019 in forum: Advocacy Projects and Campaigns
  5. ME/CFS Skeptic
    Post

    Introducing #MEAction’s 2019 ME Research Summary

    I think it's great to have such an overview so patients can inform others about current ME/CFS research. Because of the direct links to pubmed...
    Post by: ME/CFS Skeptic, Jun 13, 2019 in forum: Advocacy Projects and Campaigns
  6. ME/CFS Skeptic
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    I suspect It just takes a little longer than expected.
    Post by: ME/CFS Skeptic, Jun 13, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  7. ME/CFS Skeptic
    Post

    From neurasthenia to post-exertion disease: Evolution of the diagnostic criteria of chronic fatigue syndrome/myalgic encephalomyelitis, 2019, Murga

    Mi español no es lo suficientemente bueno para leer el estudio, ¿puede alguien resumir si es bueno o no?
    Post by: ME/CFS Skeptic, Jun 12, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. ME/CFS Skeptic
    Post

    Central sensitisation: another label or useful diagnosis? (2019) Nijs et al.

    Thanks. I'd found it by now, but forgot to update my post. But thanks anyway.
    Post by: ME/CFS Skeptic, Jun 11, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. ME/CFS Skeptic
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Some info on this here: https://www.cdc.gov/media/pressrel/r061103.htm
    Post by: ME/CFS Skeptic, Jun 11, 2019 in forum: News from organisations
  10. ME/CFS Skeptic
    Post

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    Thanks for informing us Andy. This is really frustrating news, though.
    Post by: ME/CFS Skeptic, Jun 10, 2019 in forum: ME/CFS research news
  11. ME/CFS Skeptic
    Post

    Do all ME / CFS sufferers have low stamina?

    Same here. The weird thing was that I could still sprint faster than most of my peers if the distance was short enough (50 meters for example)...
    Post by: ME/CFS Skeptic, Jun 10, 2019 in forum: Post-Exertional malaise and fatigue
  12. ME/CFS Skeptic
    Post

    The Timeline of Post Exertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2018, Nielsen, Hodges

    There was the 2013 publication of the Workwell Foundation - by far the largest publication on the repeated CPET to date - that showed the most...
    Post by: ME/CFS Skeptic, Jun 10, 2019 in forum: ME/CFS research
  13. ME/CFS Skeptic
    Post

    The Timeline of Post Exertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2018, Nielsen, Hodges

    Just to be clear: in Vermeulen's clinic patients regularly get a repeated CPET, so I think that's the data he's talking about - something...
    Post by: ME/CFS Skeptic, Jun 10, 2019 in forum: ME/CFS research
  14. ME/CFS Skeptic
    Post

    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    I agree with this. Perhaps MEpedia should not claim to be an encyclopedia but just a ME/CFS resource instead. And perhaps the disclaimer should be...
    Post by: ME/CFS Skeptic, Jun 8, 2019 in forum: MEpedia
  15. ME/CFS Skeptic
    Post

    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    Well, I agree with that. Everyone has an important responsibility for what he writes publicly and should consider the impact on others. But what...
    Post by: ME/CFS Skeptic, Jun 8, 2019 in forum: MEpedia
  16. ME/CFS Skeptic
    Post

    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    Do you really treat everything you say on this forum with the same diligence as when you give direct medical advice to someone? I suspect there...
    Post by: ME/CFS Skeptic, Jun 8, 2019 in forum: MEpedia
  17. ME/CFS Skeptic
    Post

    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    MEpedia has such a disclaimer. It reads: "The information provided at this site is not intended to diagnose or treat any illness."
    Post by: ME/CFS Skeptic, Jun 8, 2019 in forum: MEpedia
  18. ME/CFS Skeptic
    Post

    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    The draft is what is online now: https://www.me-pedia.org/wiki/Craniocervical_instability If a friend of yours is going to make a medical...
    Post by: ME/CFS Skeptic, Jun 8, 2019 in forum: MEpedia
  19. ME/CFS Skeptic
    Post

    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    I agree that it would be best if someone with medical expertise could check the info on that page, but I don't know if I will be able to find...
    Post by: ME/CFS Skeptic, Jun 8, 2019 in forum: MEpedia
  20. ME/CFS Skeptic
    Post

    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    As you yourself said, "Given the level of interest in the topic now in the ME world, it may actually be better to have an article on MEPedia about...
    Post by: ME/CFS Skeptic, Jun 8, 2019 in forum: MEpedia
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