Yes, I have been working on an update of the MEpedia page on craniocervical instability in concert with Jeff and Jennifer (So that we don't get...
Concerning negative results of the repeated CPET procedure: I don't know if this has been shared on this forum yet but there's a 2018 presentation...
Sorry for my comment Hutan, I wasn't aware you've already contacted them and explained things. This must be very frustrating. Thanks very much for...
Congratulations to the Norwegians for making this possible! I saw that the study was funded by patient organizations. Is there anyone who was...
I suspect that this would be because participants were not consistently encouraged to go give everything they have as Snow Leopard suggested,...
Not really. The main result that was shown in almost all previous studies - a decreased workload or power output at the ventilatory threshold -...
Could you explain what you mean by this: did the studies that did not push patients to their VO2max had smaller differences between patients and...
This is interesting. I think we previously discussed how the ventilatory threshold is often used as a proxy of the turning point to anaerobic...
Very sad news.
Or perhaps send a polite email explaining things about GET/CBT and showing appreciating for her wanting to study ME/CFS. She might be genuinely...
I don't think so. It was in the paper Chalder published on patients' experiences with LP: "Several of the participants highlighted the secrecy...
Seems a bit difficult to compare the two as they used different ways to measure fatigue for example. If some of the items on the Chalder Fatigue...
Excellent, thanks. Can I ask what you mean by "if you want a placebo, CBT and GET may not be that good."
I think the title of this thread is a bit misleading as it suggests that 18% of patients with MS were first diagnosed with something else. But as...
Thanks
Thanks. Does anyone know how to change a title?
Thanks @Dolphin ! I could hug you right now. Not that this is that important but it's darn frustrating to know that the citation you're...
I think I remember that one of the CBT or GET trials actively encouraged participants to no longer regard themselves as CFS patients. I thought I...
Thanks for giving this info. Many thanks to the S4ME moderators who are willing to invest their time and energy into this. It doesn't seem like...
I would advise keeping it on the forum - otherwise, there will probably be more confusion instead of less. The fact that Jen, one of our most...
Separate names with a comma.