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  1. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Hi @JenB Thanks for responding to questions on this forum. I just wanted to briefly point out that the concerns I had about CCI haven’t been...
    Post by: ME/CFS Skeptic, May 30, 2019 in forum: ME/CFS research news
  2. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Yes, perhaps I should repeat this one more time as I'm signing off from this subject. The discussion I've been having was NOT about whether CCI...
    Post by: ME/CFS Skeptic, May 28, 2019 in forum: ME/CFS research news
  3. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    There’s one more thing I would like to say before I retreat from this subject to rest. Jen, on Twitter you said one of the reasons a disclaimer...
    Post by: ME/CFS Skeptic, May 28, 2019 in forum: ME/CFS research news
  4. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Well, it is certainly possible that patients with CCI have symptoms that patients with ME/CFS also have. Such overlap is probably possible in all...
    Post by: ME/CFS Skeptic, May 28, 2019 in forum: ME/CFS research news
  5. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Hi @Jeff_w, Thanks for responding. This was a response to Stewart who wrote about the 'new' symptom cluster' neurosurgeons speculate is caused...
    Post by: ME/CFS Skeptic, May 28, 2019 in forum: ME/CFS research news
  6. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    That brings me to another point. @Jeff_w and @JenB you both said you cannot in good consciousness agree with the following statement "Patients...
    Post by: ME/CFS Skeptic, May 27, 2019 in forum: ME/CFS research news
  7. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thanks for sharing your story Stewart. In just want to pick into this because you keep saying that there is an overlap between ME and these...
    Post by: ME/CFS Skeptic, May 27, 2019 in forum: ME/CFS research news
  8. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I would argue that if a story flies in the face of our current understanding, that is precisely a reason to provide some scientific background to...
    Post by: ME/CFS Skeptic, May 27, 2019 in forum: ME/CFS research news
  9. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    This comment you are referring to was about the MEpedia article on CCI and does not suggest that people aren't taking this seriously. If I...
    Post by: ME/CFS Skeptic, May 27, 2019 in forum: ME/CFS research news
  10. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    With all the respect Alvin, but whose statements are you criticizing here? I don't think there is anyone on this forum who does not take Jeffs...
    Post by: ME/CFS Skeptic, May 27, 2019 in forum: ME/CFS research news
  11. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thanks for pointing this out Mattie, will change this in the text. I agree but that was sort of the point of my blog post: that readers didn't...
    Post by: ME/CFS Skeptic, May 27, 2019 in forum: ME/CFS research news
  12. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Hi @JenB, Since you plan to write more blog posts on Medium about your CCI diagnosis and treatment, is it possible to add a disclaimer at the...
    Post by: ME/CFS Skeptic, May 25, 2019 in forum: ME/CFS research news
  13. ME/CFS Skeptic
    Post

    Jen Brea: My ME is in remission

    I do not quite understand what subclinical IIH is. If patients, for example, do not have an elevated lumbar puncture opening pressure (⩾250 mm CSF...
    Post by: ME/CFS Skeptic, May 25, 2019 in forum: General ME/CFS news
  14. ME/CFS Skeptic
    Post

    Jen Brea: My ME is in remission

    Hi Jennifer (@JenB) I'm looking at the MEpedia references right now. I have some concerns about the clinicians in the United Kingdom you...
    Post by: ME/CFS Skeptic, May 25, 2019 in forum: General ME/CFS news
  15. ME/CFS Skeptic
    Post

    Jen Brea: My ME is in remission

    This article is mostly about intracranial hypertension. Haven't done a literature search but it seems like the main symptoms of (idiopathic)...
    Post by: ME/CFS Skeptic, May 25, 2019 in forum: General ME/CFS news
  16. ME/CFS Skeptic
    Post

    Jen Brea: My ME is in remission

    Merged thread New blog post by Jennifer Brea on Medium: Path to diagnosis (Part I: An empty sella). [MEDIA] Twitter post: [MEDIA]
    Post by: ME/CFS Skeptic, May 25, 2019 in forum: General ME/CFS news
  17. ME/CFS Skeptic
    Post

    Clinical, radiological and immunological findings in ME/CFS, other pain conditions or fatigue; Bertilson

    Thanks for the info @mango, very helpful. This seems interesting, let's hope this will be research of high quality. It can be a good thing to...
    Post by: ME/CFS Skeptic, May 25, 2019 in forum: ME/CFS research
  18. ME/CFS Skeptic
    Post

    Jen Brea: My ME is in remission

    I've collated some info about craniocervical instability (CCI) surgery in a blog post on the S4ME forum. I have some concerns about this surgery...
    Post by: ME/CFS Skeptic, May 24, 2019 in forum: General ME/CFS news
  19. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    My text is not focussed on whether CCI/AAI could cause ME/CFS symptoms or not, but on what the current evidence says; what is known and written...
    Post by: ME/CFS Skeptic, May 24, 2019 in forum: ME/CFS research news
  20. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thanks Jeff. I appreciate you having a look at my concerns. I'm glad that some neurosurgeons are trying to decrease the complications of this...
    Post by: ME/CFS Skeptic, May 24, 2019 in forum: ME/CFS research news
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