Thanks. Do you mean that the definition of the consensus statement I quoted is different from what you have read elsewhere about cervical...
Hi @Denise. Just to be clear: I didn't write that they claimed to have recovered from ME/CFS. I used the terms "recovery story" or "recovery...
I would immediately like to add some caveats to the information I posted above: A) I am obviously no expert in these complex surgical procedures...
References [1] Ashafai NS, Visocchi M, Wąsik N. Occipitocervical Fusion: An Updated Review. Acta Neurochir Suppl. 2019;125:247-252. [2] Bobinski...
Concerns about craniocervical instability surgery in ME/CFS CCI/AAI has little in common with ME/CFS Three ME/CFS patients, Jeff, Jennifer, and...
Strange, I didn't really get a notification it was published, so you knew it before me. I would like to thank @Andy and @Trish for helping me...
Thanks very much Stewart. I do note that all three articles are from the same person: Fraser C. Henderson. A quick search on Pubmed shows that...
Could you share some of the videos and papers about CCI that suggests this? Many thanks in advance!
ME/CFS patients will probably ask a lot of questions about this. Some are desperate and willing to try everything. So it might be a good idea to...
https://www.clinicaltherapeutics.com/article/S0149-2918(19)30071-2/pdf
I think we'll just have to wait to know what the implications are of this. On the upside this can be seen as a story of hope: that somebody who...
Yes, you're probably correct - that sentence does seem to suggest something like that. Sorry. I was a bit confused by the term 'effort'.
Thats an interesting thought, but if I understood correctly the authors do not argue that the similar MRI scans are an indication of similar...
I think they measured fatigue with a visual analogue scale before and after the cognitive tasks. ME/CFS patients had more fatigue at each...
I remember watching Brian Wallit's talk about this at the NIH conference. The figures he showed seemed to put the high percentage of rare diseases...
This is a comment to the paper: Flatt et al. (2019) The invisible burden of chronic fatigue in the community. I've already posted it in the...
I think their studies started with noting a remarkable improvement in approx 7 ME/CFS patients who received chemotherapy for cancer. I think...
Yeah, I agree with this. So far there were only some very small studies by Black & McCully and Friedman who both seemed to indicate that there's...
I would recommend interviewing @JohnTheJack, @Robert 1973, @Graham @Tom Kindlon, if they would be willing to do such an interview. They have...
Don't know about that. Severe deconditioning isn't all in the head, I suppose. Anyway, I don't think saying CFS is all in the head or not is the...
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