Interesting. Prusti is reporting reversible serum-induced mitochondrial alterations - sounds similar to what Ron Davis has reported. EDIT: Seems...
There was this interesting bit about the intramural study with Brian Wallit. He reported only 3 out of 22 ME/CFS being excluded because they found...
Here's Davis reaction to the rejection: http://www.meaction.net/wp-content/uploads/2015/08/ResponseToNIHRejectionsRonDavis.pdf But it doesn't say...
I'm a little bit worried that it isn't rising fast enough. Does anyone know the trajectory from last year?
Apologies Paddy, @Itsnotallaboutmepodcast Thanks for making the podcast!
There's one other passage in the podcast that deserves to be repeated because I think it eloquently explains why the problem goes far beyond...
I would recommend every ME/CFS patient to listen to this podcast. It's very valuable to hear someone who has lived with this illness for so long...
Yes, I agree with this. I'm thinking more and more that this might be more important than which criteria is used (CCC, ICC or IOM-criteria). If...
Yeah, you're right, it's probably too late already. Forgot that the committee had to consider it first. I will try to work on a personal...
Just a reminder that the deadline is April 15. It usually takes a week for S4ME to vote on a proposal. So if we want the forum to make a...
Commentary: Long Term Follow up of Young People With Chronic Fatigue Syndrome Attending a Pediatric Outpatient Service In an impressive follow-up...
I've submitted a comment to this article, but it has been rejected by Frontiers in Pediatrics (it did not meet the article type criteria). My...
Good question. In the PACE-trial only 8% of participants in the GET group and only 4% in the CBT group had serious adverse events. Can't access...
The whole idea seems to be a label that notifies doctors that the patient needs less investigation and lab tests and more psychotherapy, without...
Chalder et al. have published a response to the letters: "However CFS is operationalised young people’s perspectives are important."...
Interesting review, thanks for posting this. In ME/CFS, there have been studies that claimed CBT improves cortisol respons or grey matter volume,...
As far as I know, these studies like the one by Newton et al. looked at the diagnosis of patients who were referred to a ME/CFS centre. So the...
Does that mean that, in your view, the explanation of the CDC for removing the recommendation for GET and CBT (confusion about what the terms...
Does anyone have a transcript?
ME/CFS probably smells like being unable to wash because of exhaustion, with a flavor of left-over deep freeze pizza.
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