Found this to be an interesting story. A Scottish women named Joy Milne says she can smell Parkinson's. She is a former nurse and her husband...
Thanks to @Robert 1973, @JohnTheJack, @Graham and @Esther12 for mentoring me and helping me write the letter. Very much appreciated.
I'm now going to tag some smart people, in the hope that others take it over from here (apologies to all the smart people I forgot, it's a long...
I've focused on the above four proposals because I thought these would be generally accepted by most. But that's also a weakness: much of this is...
4) Clinicians with expertise in ME/CFS The diagnosis of ME/CFS requires specific expertise. Studies have shown that approximately 40% of patients...
3) Robust findings: replication, larger samples, and better controls In 2015, a review report by the National Academy of Medicine identified more...
2) Case definitions of ME/CFS should require the presence of post-exertional malaise Post-exertional malaise (PEM) or a marked symptom...
1) RFA’s to break the cycle of inertia Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has an estimated prevalence of 0,2% [1] to 0,4%...
I have worked out the four proposals I listed in an earlier post. These are the suggestions that came up to me. I hope it will only be a starting...
Not really, I prefer that the diagnosis of ME/CFS is made by a specialist centre or expert clinicians, not by GP's. But they are the ones...
I'm not against the F-word but there are other ways to describe it: disability, exhaustion, flu-like feeling. It would be good if the NICE...
I suspect lots of it is going to be similar to the ME/CFS guideline. It will probably provide information on conditions that doctors should...
I agree with this actually. My letter ended as follows: Flatt et al. [1] rightly highlight the debilitating nature of chronic fatigue, which has...
In Belgium there is a guideline for doctors that focuses on unexplained fatigue. It was written by the Finish company Duodecim that provides...
Bit confused and not sure what argument you're raising here. With statements like these you seem to suggest that there is no need for a separate...
Right, but if we keep defining ME/CFS in terms of unexplained chronic fatigue (which has a prevalence that is much larger than that of ME/CFS)...
Great @Robert 1973! Particularly liked this quote: It says so much about this disease with very few words. I hope that Dr Porter will read it.
I don't think Sharpe is saying this to Francis Ryan. In fact, I think he is just showing his twitter followers that she may be uninformed on the...
It says: So that would be 2.825 million per year. That seems like a lot for advocacy organizations. Is the 15 million figure also for a 4-year...
The Vox-article lists alternatives such as concentrating on effect sizes or confidence intervals or simply lowering the significance for p values...
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