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  1. ME/CFS Skeptic
    Post

    A proposal for ME Action: a commitment to evidence-based medicine

    I've received a reply from ME Action, I will post it here below. "Dear Michiel, Thank you for your very thoughtful letter. #MEAction supports...
    Post by: ME/CFS Skeptic, Nov 22, 2019 in forum: General Advocacy Discussions
  2. ME/CFS Skeptic
    Post

    The Unaware Physician's Role in Perpetuating Somatic Symptom Disorder, 2019, Morabito/Barbi/Giorgio

    Yes, weird. Why don't they cite the evidence that shows that "physicians are reluctant to diagnose mental health or behavioral problems,...
    Post by: ME/CFS Skeptic, Nov 22, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. ME/CFS Skeptic
    Post

    The unifying diagnostic construct of bodily distress syndrome (BDS) was confirmed in the general population, 2019, Fink et al

    It seems thad they just looked at symptoms "regardless of etiology" in a sample of the general population and how these correlate and cluster. I...
    Post by: ME/CFS Skeptic, Nov 21, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I thought there was agreement that manual traction, neck collars, and upright scans can cause significant harm as well. So I don't see what's...
    Post by: ME/CFS Skeptic, Nov 20, 2019 in forum: ME/CFS research news
  5. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    With all the respect Sarah, but it seems that it's you who haven't kept up with what has been said in this thread. There is basically nothing...
    Post by: ME/CFS Skeptic, Nov 20, 2019 in forum: ME/CFS research news
  6. ME/CFS Skeptic
    Post

    Harvard Medical School article: Chronic fatigue syndrome: Gradually figuring out what’s wrong. Komaroff. 2019

    I think Dolphin is right. Pubmed gives hits if keywords are used in abstract information. If you used all synonyms of ME/CFS you probably get a...
    Post by: ME/CFS Skeptic, Nov 19, 2019 in forum: ME/CFS research news
  7. ME/CFS Skeptic
    Post

    Towards an institute for patient-led research - Trish Greenhalgh, BMJ blog November 12, 2019

    Well said.
    Post by: ME/CFS Skeptic, Nov 19, 2019 in forum: Research methodology news and research
  8. ME/CFS Skeptic
    Post

    ME Association: Speak Up for M.E. in the General Election: Contact Your Candidates!| 19 November 2019

    I did this for the elections in Belgium this year and a surprisingly high number of politicians responded. And not just a standardized response...
    Post by: ME/CFS Skeptic, Nov 19, 2019 in forum: General ME/CFS news
  9. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I have this review in my folder and although I didn't cite it directly, I used it for writing my forum posts back then. So I'm not sure what you...
    Post by: ME/CFS Skeptic, Nov 19, 2019 in forum: ME/CFS research news
  10. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I also want to point out that that consensus statement only speaks of CXA angles that are "potentially pathological". It reads: So a CXA of 135...
    Post by: ME/CFS Skeptic, Nov 19, 2019 in forum: ME/CFS research news
  11. ME/CFS Skeptic
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Isn't it also the case that this notorious consensus statement was never published in a scientific journal? I had to go find it on page 25 of...
    Post by: ME/CFS Skeptic, Nov 19, 2019 in forum: ME/CFS research news
  12. ME/CFS Skeptic
    Post

    Still to open How to make patients who aren't engaged in the patient community aware of studies recruiting?

    I think that in case of cancer screenings people in the demographic age group at risk, get a notification to get tested and sometimes if they want...
    Post by: ME/CFS Skeptic, Nov 16, 2019 in forum: Recruitment into current ME/CFS research studies
  13. ME/CFS Skeptic
    Post

    PEM for those who are, or were, mild sufferers, how would you describe it?

    Yeah I wouldn't focus on the symptoms patients have during PEM because this probably differs for a lot of us. So I would focus on the...
    Post by: ME/CFS Skeptic, Nov 16, 2019 in forum: Post-Exertional malaise and fatigue
  14. ME/CFS Skeptic
    Post

    How much does it cost to fund a pilot study?

    I think the Solve ME/CFS Ramsay grants give about 35.000 to 50.000 to a research team per year. See minute 2 of this interview with Andy: [MEDIA]...
    Post by: ME/CFS Skeptic, Nov 16, 2019 in forum: Fundraising
  15. ME/CFS Skeptic
    Post

    Complex Regional Pain Syndrome (CRPS), what to do?

    Van Houdenhove, probably the most influential voice on CFS in Belgium (he's retired now) used to speculate about Complex Regional pain Syndrome...
    Post by: ME/CFS Skeptic, Nov 13, 2019 in forum: Other health news and research
  16. ME/CFS Skeptic
    Post

    Australian koalas are currently being invaded by koala retrovirus A (KoRV-A) 2019

    I'm so used to your avatar now that I tend to picture you as a talking koala. I would probably be confused If I were to meet you in real life and...
    Post by: ME/CFS Skeptic, Nov 11, 2019 in forum: Other health news and research
  17. ME/CFS Skeptic
    Post

    A potential S4ME project: What are the basic science facts that ME advocates need to know and understand?

    This is brilliant. Thanks for sharing.
    Post by: ME/CFS Skeptic, Nov 10, 2019 in forum: Advocacy Projects and Campaigns
  18. ME/CFS Skeptic
    Post

    The use of the labels ME, CFS, ME/CFS

    Thanks for sharing this information. If I look back at the Holmes criteria I dont see a wastebasket for unexplained chronic fatigue, it seems more...
    Post by: ME/CFS Skeptic, Nov 9, 2019 in forum: Diagnostic Criteria and Naming Discussions
  19. ME/CFS Skeptic
    Post

    A logistic regression analysis of risk factors in ME/CFS pathogenesis. Lacerda et al. 2019

    It seems that ME/CFS patients reported a little more of most things but that nothing really stood out. I suspect that these kinds of...
    Post by: ME/CFS Skeptic, Nov 9, 2019 in forum: ME/CFS research
  20. ME/CFS Skeptic
    Post

    UK: MRC and NIHR announce ME/CFS workshop, November 2019 & ME/CFS Biomedical Partnership FAQ

    Someone who knows the diagnostic criteria, is qualified to test for and exclude other possible causes for the symptoms and has done this more than...
    Post by: ME/CFS Skeptic, Nov 8, 2019 in forum: ME/CFS research news
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