By clinically confirmed I mean by an expert clinician and according to an official case definition, as is the case in most research studies. Not a...
Apologies if I gave the wrong impression. I did try to explain in a further post. The prevalence of self-reported ME/CFS in studies is usually...
What about the risk of picking up wrong signals, signals that have little to do with clinically confirmed ME/CFS?
Not really, I tried to be careful in how I worded it. It's about a potential difference with the way ME/CFS is defined in most research. Most...
I'm not sure if they used it in this way. What we would need is a % of patients diagnosed solely with the questionnaire who's diagnosis of...
This all looks great. Wonderful to see collaboration between researchers and patient involvement. Thanks to @Simon and @Andy for their work on...
I tend to have more energy after a meal while most healthy people seem to experience the opposite and feel a bit fatigued. Not really a dramatic...
? The paper cited (by Peter White's group) reads: "Annual incidence rates for CFS/ ME diagnoses decreased from 17.5 (16.1, 18.9) in 2001 to 12.6...
Thanks for your comment. I think the example of AIDS, while interesting, is very much the exception rather than the rule in medical history. I...
I think it was this commenary: Sharpe et al. (2017) Do more people recover from chronic fatigue syndrome with cognitive behaviour therapy or...
No not yet, but perhaps it's still a bit early. I've only sent it on Sunday. I suspect if they were to take it seriously and discuss it among ME...
I really hope it gets reinstated. Now that this is brought up I've been meaning to ask the following: Are there any official documents about the...
I see. I think that's the way to do it because from reading the comments it seems like patients were given very different treatments under the...
Thanks for the clarification @Gecko, very helpful. Will adjust my text to avoid confusion. Perhaps that explains why there was so little...
I can't speak for him but I got the impression from watching the video that he meant fundamental research into mechanisms that could account for...
Pretty impressive that you guys got this done in such a short period of time. You really put the Action into ME Action! Thanks also to Tom Kindlon...
Brian Hughes and buffet included! That sounds like a recipe for succes. Whish I could be there.
Thanks @Cheshire I hope the situation in France will improve, it sounds awfull.
All the problems that I mention in the blog, the reasons why I think the review is misleading, apply to both the 2015 version and the recent...
Separate names with a comma.
