The PACE trial claimed to be on chronic fatigue syndrome and their definition did not include PEM. That is scientifically legitimate. The term ME...
That will be the catastrophising hysterics wielding SAS grade Swarovski 10x50s with image stabilisation?
I think this is a very good proposal. It might be quite difficult to keep manageable but it ought to be possible to draw up some requirements for...
I think the problem is that it is very hard to tell quite what is going on with food intolerances. They might reflect a pre-exiting viral or...
Ah, but he (Garner) was misled, under a delusion, because of the effect of his mind over his body at the time, which he put right by switching to...
That can be raised as a concern for those wishing to have advice specifically for those with PEM but the trial would still be entirely...
This would presumably be at the stage of planning to set up a trial. The quotes are quite interesting in that they suggest that those with inside...
Well done @Trish A bit bizarre that they consider two people on Forward ME adequate to tell all the patients about what went on - a bit five...
I doubt it, @Ken Turnbull. This forum is pretty unusual. There have been lupus forums for years and they aren't bad but there isn't much science....
I suspect he had just come to hear about AfME being involved the day before from one of his PACE friends. I wonder who he thinks he is tweeting...
It was clear from the beginning that as an open trial with subjective outcomes it was dead in the water, but my understanding is that the pushback...
Many of the following posts have been moved from Paul Garner on Long Covid and ME/CFS - BMJ articles and other media. after Paul Garner tweeted...
Garner really is getting into a muddle. Good point about the change at AfME being in 2018. Certainly in 2014 Peter White was welcomed to defend...
I think Garner is just parroting something from Michael Sharpe or Peter White - maybe something they would not actually say out loud at a meeting...
I can only see tweet 1. Where does AfME come in? They had a reasonable question, appallingly bad methods, deliberate gerrymandering in the...
The thing that struck me about this presentation is how he has suddenly come to look very old.
I think they mean muscle fatiguability.
Little that Nath says appears to have any logical basis. There are lots topple with ME/CFS too. Being closer to the infectious process is not...
This seems like the ultimate paper on the: Taking The Pisss-hiccup (wink wink) index. (Ideal for lock-down parties and such.) But there needs to...
Rituximab haș been tried and may have some benefit but we knew early on that antibodies of the sort seen in scleroderma tended not to go away. It...
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