Well done, @Wyva. A thorough debunking of the article.
:hug:
I am trying to imagine a better spin on what is happening. Maybe the trustees are having emergency meetings to resolve the situation, including...
On the MEA Ramsay Research Fund, there's a post on Facebook today from Charles Shepherd: https://www.facebook.com/meassociation/?locale=en_GB...
She's friends with Wessely/Gerada. I think the only way some of that clique can hold on to their beliefs about ME/CFS is by demonising pwME. Some...
Probably ME research UK, or directly to either the UK ME/CFS biobank or Chris Ponting's team.
Couldn't the cause-effect be the other way around? In a fluctuating inflammatory condition, reduction in inflammation and the consequent reduction...
Thank you so much for all this effort, @forestglip. There was no way I was going to manage to watch these, and your summaries are great. I also...
Week beginning 15th April 2024 Cochrane have sent a brief response to the latest Science for ME committee letter in which we presented the...
Maybe muddling up different things here. From a pwME's perspective, of course symptoms are central to our experience, but it is the pattern of how...
All this shows is that depression questionnaires are not suitable for people with physically and cognitively debilitating conditions like ME and...
I think the delay is standard for theses, so they can get papers published in the meantime without the big reveal coming from the thesis. In these...
I had my flu and Covid vaccines a couple of weeks ago. I am on my GP's list for elderly housebound home vaccinations. I managed to get my daughter...
It's difficult for those of us who stopped being MEA members a few years ago. I don't have voting rights or any right to have a say in what the...
I hope you recover quickly, @AliceLily.
I imagine a much more subdued scene, with reassurances among Trustees that this social media froth will soon blow over, and staff keeping their...
It's interesting, I think, that back in 2019 Riley got away with saying similar things in an article. We protested in forum discussion, but Riley...
I'm with you on this, @Yann04. I don't think I feel sicker in terms of severity of symptoms now that I'm housebound and spend a large proportion...
There is further discussion of UK ME organisations on this members only thread.
Further discussion on this trial here: Bias due to a lack of blinding: a discussion
Separate names with a comma.
