The Larun review is specifically a review of clinical trials of exercise therapy for CFS. It only looks at the subjective short term outcomes of 8...
Given that there are close to zero doctors specialising in ME/CFS, that effectively makes the Cochrane reviews of ME treatments likely to be...
I would think it would help if you are dust allergic. I found a robot vacuum cleaner helped keep the floor dust under control during the pandemic...
I have been trying to find a way to express the difference I see between minorities of the sort @Jonathan Edwards listed - deaf person, cancer...
I don't think the problem is advocacy gone wrong for ME/CFS. At least I don't think that's the major problem. think the characterisation of pwME...
If it has to be done manually that's not really surprising in the middle of the holiday season when many offices close for a week or 2.
It's understandable that she supports MS because her mother had it. What is not understandable and is in my view pretty unforgivable, is her clear...
As far as I can see this research is done with healthy people, so the fatigue they are talking about is the immediate healthy fatigue after a...
It's funny reading that and just substituting a couple of words: Pot. Kettle.
I think the pilot was supposed to be the particular way of doing patient engagement with an IAG advising the review writing group, and some public...
It's so blatant. They list the limitations - subjective, single time point - then go on and claim cause anyway.
I have just been reading through the brief descriptions of the 6 full trustees of the MEA: https://meassociation.org.uk/mea-team/ Of the six,...
Please avoid speculation about the diagnosis of identifiable indivuals, as per Rule 2a.
I summarised last weeks events in the weekly news: https://www.s4me.info/threads/news-in-brief-december-2024.41540/#post-574260 Including Hilda's...
I'm not going to ruin my Christmas by watching it, so I'll have to leave it to others to make complaints.
Perhaps this warrants complaints to the BBC.
I wonder whether all this relatively new stuff that restricts how reviews can be withdrawn was done specifically to scupper withdrawal of the...
I understand and share the wish to get rid of the CFS name, but accept it as part of the ME/CFS name for now. I don't think there's any point...
I had a quick glance through the AfME Articles of Association at Companies House as an example for comparison, and there seemed to be no mention...
More from this link: This has not happened with the Larun review, for example Michiel Tack's 2020 comment which detailed multiple problems with...
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