Fantanstic news. Thanks to all involved.
Petition now at 12,749 signatures. It becomes even more vital that the 2019 review is withdrawn now that we have the shocking news that Cochrane...
Quoting from the letters thread:
I wonder whether the protocol ever even reached the IAG for comment. The procedure set out by Cochrane had their editors and reviewers getting...
I'm beyond words shocked by this. Cochrane have had the draft protocol for nearly 2 years and now this! No wonder things had gone so quiet in the...
Most of what is needed is in the NICE guidelines, so quoting from and referring to that gives a solid basis for recommendations.
That's a good point. I set the audiobook to just run for an hour.
Being a contrary person, I can't fall asleep to music. It either annoys me or has emotional associations that keep me awake. I fall asleep to...
I find it strange that the abstract doesn't state what biometrics are monitored. I assume this is the Visible data, which as I understand it just...
Well done, @JohnTheJack. I hope this means you can get your home better insulated and heated.
This is depressingly awful.
I have only read the abstract. I don't understand the concept of 'poor symptom perception'. I thought the definition of symptom is what the person...
I think this it relevant to men's and women's reporting of pain:https://www.theguardian.com/commentisfree/2024/oct/14/men-women-pain-school-period...
I doubt there will ever be total agreement over definition. Personally, for most of my years with mild to moderate ME/CFS, I would not have fitted...
That's how I read it.
I bought that book with great hope that it would be really good. It was awful. Muddled and badly written.
For the UK, key names that should come up in the story are Simon Wessely, Peter White, Michael Sharpe, Trudie Chalder, Esther Crawley. Also, in...
Film: The Tangled Story of ME/CFS From @Valerie Eliot Smith's blog: https://valerieeliotsmith.com/category/the-secret-files/ if you want to dig...
The Rise and Fall of the Psychosomatic Approach to Medically Unexplained Symptoms, Myalgic Encephalomyelitis and Chronic Fatigue Syndrome by David...
That looks like a very good motion to me. I can't see any reason why the current trustees would reject it. I wonder whether it's possible for the...
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