That’s great! Always good to quote back at him and his colleagues when asking them for money!
From Australia: Sally Black wrote a heartwarming story about how Millions Missing Palm Cove turned out, despite the tshirts not turning up in...
Good questions @Skycloud Short answer: it depends. Australia tends to look more to USA/NIH than UK, but lots of our GPs are trained in the UK...
It’s awful that there’s no help from patient support organisations either if you get held in psychiatric units. The organisations say “they don’t...
@chrisb Unfortunately the warnings about the 2002 Australian chronic fatigue syndrome guidelines were ignored and the dire predictions of the old...
A young woman with very severe ME contacted me to help tell her story. Over the past couple of months she’s told her harrowing story of...
There’s a number of problems with this petition: 1. It’s already been tabled in Parliament (paper version) and had a response from government....
There’s a number of problems with this petition. 1. It’s already been tabled in Parliament (paper version) and had a response from government....
Next month Australia is holding a federal election, so it’s a final chance to push for funding commitments. Here’s a letter template to make it...
Thanks @alex3619, misdiagnosis is a big issue in Australia, fewer than a third diagnosed with CFS meet the criteria for ME...
This thread has made me hungry! Sorry bunny-lovers. And laugh at the very funny responses. Here’s perhaps another ingredient to add to the stew...
Australian psychiatrist Hickey was an author of the Fukuda as well as Australian CFS Criteria, which advises GPs to tell their patients they have...
I really hope you can find support. Agreed, they are conflating the two. Unfortunately the advisory committee report says there’s a 50-80% rate...
Perhaps, but may be unlikely as the last government minister to take action was Wooldrige (Liberal) around 20 years ago.
Hi @Esther12, That paper from last year shows the NDIA hasn’t ever considered it because the evidence it has says ME nor CFS is permanent. In...
Absolutely @Sly Saint! You’ll notice that is true from watching the Emerge conference talks recently. It’s perpetuated by patient organisations...
Emerge is again asking the Minister about List B, but CEO Heidi Nicoll specifically asked his department already, in our meeting and already...
@Ravn Here are my suggestions (I used to work in a Minister’s office & government here in Australia). Limit your requests to three things. You...
Architect Anthony Clarke and pwME Anna Kerr spoke recently at the Emerge conference about designing homes taking into account our disease. I found...
How could the committee’s report misinterpret the Dubbo study when a Dubbo study author is on the committee? I don’t think they are talking...
Separate names with a comma.
