No, the International Criteria for ME doesn’t specify 6 months before meeting the criteria. It’s referred to as the acute phase. I was diagnosed...
The Minister’s response was predictable and reasonable, of course a government department will follow government guidelines. Here’s more on...
@rvallee The Mason Foundation has funded some shockers of studies, perhaps you are thinking of them? (Including some I’ve started petitions asking...
Here’s Australia’s government spending @rogerblack: A prospective study of the psychiatric & medical characteristics of post-infective fatigue &...
@rvallee which is the foundation that does this? If you’d like to ask them questions and write about it for ME Australia, I’m sure there would be...
Dr Elisha Josev’s presentation was not streamed but if you are interested, this is the study she spoke about:...
This was one of the things ME Australia requested in our meetings with Minister Hunt, and he agreed to. While we were disappointed he wasn’t there...
I understand he was, he did Alison Hunter’s autopsy: https://www.ncbi.nlm.nih.gov/pubmed/27091026/ Professor Barrie Marmion founded the Adelaide...
Yes, good questions, the producers were receptive to being briefed on what’s happened in Australia recently, which always helps.
Go @ahimsa! I agree with @Peter Trewhitt, it is heartening to see this happening in other countries. I’m full of admiration for the people...
The Mason Foundation are offering $1m over 5 years for a biobank or patient registry. The Mason Foundation are one of the biggest funders of...
Here’s an article on the Greens’ policy announcement and details of their history of supporting people with ME and CFS in Australia:...
We met with senior executives from the National Disability Insurance Agency, who administer the NDIS. Here’s what happened in the meeting:...
No, it’s real, not an election promise!
Here’s the response from Dr Chris Armstrong and Prof Paul Fisher, who came to meetings with Minister Hunt about the funding, and Christine Hunter...
@hixxy There is a danger of that and we can see UNSW gearing up, releasing a review recently calling for more biopsychosocial studies into ‘mecfs’...
Here’s the link to the media release online: http://www.health.gov.au/internet/ministers/publishing.nsf/Content/health-mediarel-yr2019-hunt051.htm
Health Minister Greg Hunt announces $3 million for biomedical research funding for chronic fatigue syndrome!
I asked Prof Broadbent about the pilot and her views on the PACE trial:...
It was intentional to include that figure in this draft report to government. The current Australian definition of chronic fatigue syndrome...
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