Do you really think so? I hope you're right, but i have difficultly imagining that they're following that, or indeed very much regarding ME/CFS....
I am such a cynic, this withdrawl feels too good to be true, like they have withdrawn it just to placate people & then will make no changes &...
It seems to me that this might be even more important than who is on the committee?
Was 2007 a 'review'? I thought that's when they were first developed ie the very first guideline that NICE did for CFS/ME? Am i mistaken? I wasnt...
Thanks for that @Sly Saint. Happy to be corrected. But I meant the first 'proper'/full review. I thought the decision in 2011 was that they looked...
Indeed. I think the placebo brigade are just a section of the MUS brigade really though. Placebo is just a large part of MUS theory in reverse...
Me too.
A great blog post, but i do wish people would stop with the factual error of stating that the NICE guideline was based on the results of the PACE...
Crikey i had no idea he'd done that & nobody had stood up & challenged him on it. What a betrayal from our charity reps. Indeed it is not, & its...
I had IBS for 7 yrs before ME hit. It was/is unpleasant with very painful diarrhoea & stomach cramps. It was miserable but I lived a very full...
Absolutely. Perhaps she feels her time is better spent pushing forward rather than breaking to write papers/ get published. Not being a...
precisely! yes Barry thats what i thought. what seems unclear is whether he is meaning a victim of patients etc, or a victim with them.... either...
Will it be able to be included in the NICE review?
SH's 'over the shoulder' comment made me feel really uncomfortable, it's a bit creepy & manipulative iyam. It feels like he's either perpetuating...
@dave30th you make me so happy every time you speak. I just start smiling at the sound of your voice, and it's the same when I start reading...
This is truly excellent. I not managed to read all of it yet but impressed with what i've seen. Many thanks to Vink & Vink-Niese
@Mark Vink you might like to read the very warm reception to this paper on this thread :)...
actually no, good point. perhaps the thread would be better deleted but i dont know how to do that.
it'll be lovely wont it. 15 people in a room - 4 with mild ME/CFS, 10 with CF all chatting together & 1 with moderate end of severe ME almost...
yes i actually didn't notice that. I thought i'd clicked on all the links, but actually It also links to an article about 'attitude' on the...
Separate names with a comma.
