Indeed. It all reminds me of an episode of 'Yes Minister'. Somebody will be appointed to a 'quango' soon :rolleyes: :bored: :banghead:
https://www.gq-magazine.co.uk/article/chronic-fatigue-syndrome-everything-you-need-to-know Not too bad i thought. Of course not perfect but I...
:jawdrop::laugh::laugh::laugh::laugh::rofl::rofl::rofl::rofl::rofl: Oh that did make me laugh @Jonathan Edwards, i needed that tonight, thank...
I'm a bit fed up wth the MEA over their social media policy too - not issuing warnings etc (as in my post above) But, while i think they have a...
Sometimes a hot bath makes me feel significantly better, sometimes much worse. It does help with pain while i'm in there, oh god it feels so good!...
well i got protagonist.... which reading the description, is completely wrong. I've done this, & slightly different but based on the same idea,...
I can clearly see your post @Andy & we're not fb friends. BUT i had to change the fb settings from 'most relevant' - where fb chooses which...
I'm afraid i've not the strength to read the whole thread so apologies if i repeat or go off track. But I couldn't agree more. I think a 'name &...
oooo you wouldnt want to do that <sharp intake of breath> ... that'll be boom & bust n you want to avoid that! for anyone unclear that was...
Exactly. I couldnt walk 500mtrs in 6 days. It took me a while to understand the chart because of that. My SF36 is 10-15 on a good day, & my...
This. And the rest of whats been said by JE in this thread re non blinding & subjective/objective measures. I could rave on about all the...
Eww eeww eww eww EEEWWWW! What on EARTH are the NHS doing getting 'into bed' with these people. I don't know much about the OHC but the Chrysalis...
@kmclellan Hi, I probably shouldn't have posted last night as my comment doesn't make a lot of sense, i was struggling & i probably could have...
Indeed. What we want is something that is actually 'evidence based'. And when we say 'evidence' we mean high quality, scientifically sound...
Ok so i a bit foggy so will just give first impressions... sorry they are 'whats wrong' rather than what's right, because thats just what is...
Very, very good. such a good precis of the issues
Precisely. I do think it's poor for a doctor of his status, standing, influence & power over whether his patients receive such benefits, to not be...
Wow @Dx Revision Watch this whole situation is deeply disturbing & scary & it just stinks that a few patients/advocates - mainly yourself & Mary...
yes, https://www.s4me.info/threads/telegraph-front-page-wessely-photo-wth-duchess-of-cambridge-bps-back-pain-treatment.3124/ posts i dont think...
It might be worth doing anyway for the benefit of new patients, regardless of what happens with NICE - i dont know about that, as long as we're...
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