I know someone who is struggling with this at the moment. They will hopefully be switching to some a different type of medication soon which will...
In my own case, the "rules" definitely hurt. Taking naps as an example - I found I felt better all round & slept better if I had some bed rest...
Despite claiming to have some knowledge of ME ,they never quite seem to understand it matters whether the horse is in front or the cart. Sleep...
Not only did PACE not adequately define and record harms but many CFS clinics don't either under the assumption that their treatments can't harm....
Exactly. It's all about context and what level of anxiety, worry, concern etc is appropriate to the situation. Appropriate levels of anxiety or...
Bolding mine. This is definitely true. In addition to wanting to give socially acceptable answers - - Patients may fear that if they don't...
Really good blog. :thumbup:
My ME consultant liked my husband coming to appointments even though he didn't say anything for most of the appointment. I tended to forget bad...
? In my experience hospital staff have been excellent at "treating" my perceived health anxiety. Having an easily visible and recognisable...
I am concerned. This is the second tweet that seems to imply she believes ME=chronic fatigue. I do understand that social media isn't the best...
This is a really important point. For a randomised trial patients should not undergo the usual screening process & if Flottorp had a clue she...
I know several people who have been more re less bullied by family members wanting them to do this. The old " if you really wanted to get...
With regard to the same tweet - If the GP has recommended LP and a patient struggles with it, is told by their LP practitioner that they are...
:thumbup: I think @Jonathan Edwards a while back said something along the lines of if you wanted to know if the patient felt better you could...
I fear we have now reached a new era - the era of post-medicine.
Another thing that strikes me about attempts to measure fatigue is that not only is it impossible to measure, we can simply rate as @rvallee says,...
So what? @dave30th has received donated funds from many patients and ME advocates. His only remit ( as far as I'm aware) is to look into matters...
If there isn't a tsunami of depression then you can bet your life they'll redefine what depression means! This pandemic is a godsend for the MUS,...
:thumbup:
My husband and his colleagues don't seem to fit into any of the groups Sir Simon has "guessed" at. They are complying with the rules to stay...
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