I applaud & welcome the fact someone has gone to the bother of doing the seminar. 40 minutes about what has changed and how. It also highlights...
I was originally diagnosed with ME in the late 90s. My consultant told me that he would use the combination ME & CFS - I'd have to dig through...
Hmmm.....I don't think that just because drugs might be safe individually it necessarily follows that they'll be safe in combination unless they...
It's like watching a car crash in slow motion, while you stand there helpless..... My heart goes out to these guys. It's far too soon to think...
From the blog :laugh:. Value for money for my donation to the crowdfunding right there.
Isn't this burnout an area of special interest for Gerada anyway? I seem to recall something a couple of years ago where she was going on about...
It changed for me over time. When first ill I would suffer PEM immediately - extreme shakes, weakness, dizziness, needing to lie down asap, and...
I see what you mean @Barry and while I don't deny that many ME patients do feel that "fatigue" is a component of the condition, it the THE...
You just beat me to it @lunarainbows! Their Director of Research Dr Megan Arroll is a Chartered Psychologist (CPsychol) From bps.org.uk I just...
If vulnerable and desperate ME patients are involved then I think it's worth bringing it to the attention of both @Action for M.E. & the MEA...
Absolutely - my list wasn't meant to be exhaustive by any means. If we're going to link illnesses in any way then it would be more beneficial to...
When I worked alongside salespeople there was a technique called FUD. I utterly loathed working with anyone who in any way endorsed it. Fear...
Might as well have just said "tired and a bit sore" and been done. Awful. This is a huge step back.
Bolding mine. I was diagnosed with Hashimoto's many years before developing ME. As a sufferer of both I don't believe the two feel the same, to...
Yep. I think many of us, when we first became ill did exactly that. I know I did. Everything else went out the window as I tried to cling on to...
Good old Countess of Mar. Big loss to us but she deserves to put her feet up. There were times when it felt like she was one of the very few...
:thumbup: Thanks for the reminder - I knew there was something I planned to do, I just couldn't quite remember :rolleyes: Edit - done!
WTF?? Not only is this ignoring that if PACE proved anything it was that this doesn't work. Charities who carried out patient surveys - the...
Oh. That's where that came from. Interesting to know.
Even if there is no response, there's no longer any deniability either. There's a nice public record of them being told quite clearly that their...
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