It would be really interesting to compare two cohorts, one with ME and the other on interferon therapy, in a study comprising carefully-designed...
Yes, it surprises me too. I haven't done CBT, but I've cut out of other treatments that weren't making any difference because staying at home did...
Just for badness, I'm going to suggest bringing in a third alternative! Continue the treatment; Be given $10; Receive nothing (but you don't...
No, I'm not sure either—it does feel a bit as if they've picked out the symptoms they wanted and ignored the ones they didn't. I wonder how many...
It sounds really interesting, I so wish I could still read things like this. I know I'd last barely 10minutes before needing a break, though,...
That looks really good, doesn't it. Hopefully it will get read and used. It reminded me of the thing I'd like inexperienced GPs to know about ME,...
It's slightly difficult, as it wasn't always consistent and not always by choice either. For instance, I might be ready for some work but have to...
Agree 100%. I wouldn't refer to it as rest if I were speaking to anyone other than an ME community, I'd call it recovery time.
I was only able to take time off because I was too ill to work, it wasn't negotiable. But when there isn't that level of illness, I'd agree...
I did it when I retired from full-time work. Not in the hope of recovery, but of recovering more function. It worked, but as with previous...
My experience of fractures has been much as you say, recovery is bit slower. But it is definitely a great time to pack in some recuperation, as...
It might, especially given that at proof-of-concept stages, more effort and care goes in to delivering interventions and fewer corners are cut....
Yes, that does get to the nub of it. It also has the advantage of potentially making it easier to monitor patients for longer, as they're less...
Aah, but they still get paid, and that's what matters! Perverse incentives need to be removed, and funders ought to get a lot sharper—if people...
But this is part of my problem with the SF-36. It compares people to "normal", even if they don't have anything like normal function. So is the...
No, I haven't for ME, but then again nobody has needed to monitor my long-term response to a treatment in a trial, because there haven't been any....
Ah, yes—now I've had chance to look, I have been screened using this. The rheumatologist got to the third hilariously inappropriate question to...
I've never heard of it, at least by that name—I'll look it up.
I'd say I've had the fatigue—lots and lots—but not really burnout. I've been lucky enough to have a fair degree of control over my environment,...
That's mainly what drives me to contribute to research. I've long since reached an accommodation with ME on a personal level, but it breaks my...
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