I agree with Graham that a questionnaire could be useful if the questions are smart enough. You could for example ask: do simple tasks like making...
So there's some news from Belgium. The government has extended its ME/CFS-convention until 2020. In parliament our Minister of Health said the...
I thought ME Action were the ones claiming the 80% figure. It's in the educational video by David Kaufman. Good to check these things. Had a...
Thanks Tom. Impressive collection of ME images you have there on Pinterest. These seem to be the major obstacles: The pictures have got to be...
Thats great! Thanks for responding for ME Association @Russell Fleming ! Other major charities such as Solve ME/CFS and ME action UK have...
So in the Radio 4 interview Pariante said: And in the BBC Wales interview he claimed: So he is actively promoting the confusion. I don't think...
Bit confused now. Maybe if I rephrase my argument our differences will become clear. As I see it, the authors used different phrases to describe...
I think the term PEM has shifted from (1) simply being post-exertional malaise as introduced by the Fukuda criteria – something that is reported...
They deconstructed each definition into different statements. The one that was taken from the Ramsay definition and that got the highest score was...
Merged thread: 'A database/website for ME images' With the recent media attention regarding the Pariante article, @TiredSam brought up the issue...
I disagree. This is mostly about clinical information. There seems to be a large group within the ME/CFS entitiy that reports post-exertional...
Really? Do you have a link for that? I thought he simply analyszed PEM descriptions and argued that PENE failed to include muscle fatigue which is...
This is interesting. I think I remember Charles Shepherd saying something similar: that some cfs centres claim to use GET for the record, but...
I personally think that gradually increasing exercise in the expectation of improved health or recovery should be called GET rather than pacing,...
Interesting, do you have a link or reference?
Ok. But to be honest this doesn’t convince me. It’s a possibility but why would the patients do that? If you suppose they didn’t have ME and...
Thanks @Clementine What's your take of the report? Is it as good as we're being told? Are there any negative points? Many thanks in advance.
I'm confused: if Oxford patients are less ill wouldn't that result in less instead of more differences between patients and controls? [EDIT: sorry...
I think this is interesting. There was allready a review on exercise tesing in ME/CFS by Nijs but this one pooled the VO2peak data. They found...
It requires PEM, the Oxford and Fukuda criteria don't. Being less bad is also an improvement I guess.
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