Peak Oxygen Uptake in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A Meta-Analysis. Franklin JD, Atkinson G, Atkinson JM, Batterham AM. Int...
I don’t know if this is the question. One of the few useful things we learned from CFS research is that there is a lot of idiopathic chronic...
I find these figures hard to believe. The prevalence is almost double of previous estimates. Perhaps these insurance files relied on GP diagnosis...
This sounds like a positive development. Great that they see the CCC as the standard diagnostic criteria and question results of cfs studies....
Think there is some confusion here. The paper never claims the patients with persistent fatigue after interferon alpha had cfs, they simply...
In Belgium psychodynamic oriented psychiatrists have elaborated the CBT model for ME/CFS. They say the triggering event is no coincidence because...
I had some trouble finding the interview with @JohnTheJack but here it is (it start's at minute 44) https://www.bbc.co.uk/sounds/play/m0001n52 I...
I think I would have found this an interesting study if they presented it as a study of persisting fatigue that can be relevant for conditions...
Ok, but there are still some things that don’t add up. The patients in the trial were given very cautious instructions to increase their activity...
Do you think that was the case? Because the many patient surveys indicate that quite a lot of people with ME have tried GET and I know that some...
I’m quite new to this. I postponed reading the actual PACE trial documents until recently. What struck me is how bad the results are even if you...
On the other hand, I think that the evidence we have of harms of GET does not reflect the actual danger/risk of this therapy. Most of the RCT’s...
Nunez et al. reported worse physical function and more pain 12 months after a multidisciplinary intervention that combined GET and CBT. Núñez M,...
Oh wow. Patients were selected using the Oxford criteria, improvement criteria from the PACE trial were used with only subjective outcomes and...
Actually I remember reading the temporary and extended version of the previous NICE guideline and thinking there were some good elements in...
Yes, sorry I think we agree on content but simply used a different definition of pre-emptive rest. I thought it meant rest that isn’t aimed at...
Thanks for explaining @Evergreen! I still have some doubts about this, though. I fear pacing will become an ambiguous name for all the...
Awesome. Thank you!
Any chance the Norwegians (@Kalliope maybe?) could give more information or maybe documents about this? I think Belgian organisations could use...
Interesting. The Norwegian ME Association seems like a very competent organisation. I particularly liked this section of the interview: "A few...
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