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  1. ME/CFS Skeptic
    Post

    A general thread on the PACE trial!

    His actual name is David Blanchflower, and he seems like an influential labour economist. https://en.wikipedia.org/wiki/David_Blanchflower
    Post by: ME/CFS Skeptic, Jan 27, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. ME/CFS Skeptic
    Post

    A general thread on the PACE trial!

    Danny Blanchflower has more than 60.000 twitter followers, including some influential people. Some of them might get interested in what’s the fuss...
    Post by: ME/CFS Skeptic, Jan 27, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. ME/CFS Skeptic
    Post

    Australia’s NHMRC ME/CFS Advisory Committee draft report released for public consultation

    Is nobody publishing their feedback online (here on S4ME)? This could help spark the debate and inspire others to make comments as well.
    Post by: ME/CFS Skeptic, Jan 27, 2019 in forum: General ME/CFS news
  4. ME/CFS Skeptic
    Post

    Myalgic Encephalomyelitis or What? The International Consensus Criteria (Frank Twisk, 2019)

    Same here.
    Post by: ME/CFS Skeptic, Jan 27, 2019 in forum: Diagnostic Criteria and Naming Discussions
  5. ME/CFS Skeptic
    Post

    Self-Compassion and Adherence in Five Medical Samples: the Role of Stress, 2018, Sirois and Hirsch

    Adherence to what? GET and CBT?
    Post by: ME/CFS Skeptic, Jan 26, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. ME/CFS Skeptic
    Post

    Collating Brain Research in ME

    This might be of interest: Suzy Chapman and Mary Dimmock have collated this reference list of neurological studies. It was used to argue that ME...
    Post by: ME/CFS Skeptic, Jan 26, 2019 in forum: Resources
  7. ME/CFS Skeptic
    Post

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    I have responded with the following brief comment:
    Post by: ME/CFS Skeptic, Jan 24, 2019 in forum: Advocacy Projects and Campaigns
  8. ME/CFS Skeptic
    Post

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Valerie Eliot Smith has responded to my questions. Since this is all open access on her blog and the subject is meant to be debated within the ME...
    Post by: ME/CFS Skeptic, Jan 24, 2019 in forum: Advocacy Projects and Campaigns
  9. ME/CFS Skeptic
    Post

    Open Quality of life study

    https://www.researchgate.net/profile/Jemel_Aguilar
    Post by: ME/CFS Skeptic, Jan 24, 2019 in forum: Recruitment into current ME/CFS research studies
  10. ME/CFS Skeptic
    Post

    Europe: European Federation of Neurological Associations (EFNA)

    I unfortunatedly know little about this, but there is another Belgian ME advocate who has been following up on this for the European ME Alliance...
    Post by: ME/CFS Skeptic, Jan 23, 2019 in forum: News from organisations
  11. ME/CFS Skeptic
    Post

    Does your ME cause sleep inversion?

    Same here. It feels like I constantly have to put in effort, simply to keep up a sleeping rhythm that is close to normal. A bit like you have to...
    Post by: ME/CFS Skeptic, Jan 23, 2019 in forum: Sleep Disturbance
  12. ME/CFS Skeptic
    Post

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    I have posted the following response on Valerie Eliot Smith's blog, Changing the narrative #3: "Thanks for writing this blog. Creating a media...
    Post by: ME/CFS Skeptic, Jan 23, 2019 in forum: Advocacy Projects and Campaigns
  13. ME/CFS Skeptic
    Post

    David Tuller: Trial By Error: My Six-Month Review

    The ME community funds many researchers through organisations such as OMF or MERUK. Do not think that your situation is that different. You're not...
    Post by: ME/CFS Skeptic, Jan 22, 2019 in forum: General ME/CFS news
  14. ME/CFS Skeptic
    Post

    World ME Alliance, was previously IAFME: International Alliance for ME

    I tried to, but it didn't work. When I push the button "Submit", nothing happens.
    Post by: ME/CFS Skeptic, Jan 21, 2019 in forum: News from organisations
  15. ME/CFS Skeptic
    Post

    Central sensitization: a matter of concern

    This article gives a good overview of how restricted our knowledge about central sensitisation actually is:...
    Post by: ME/CFS Skeptic, Jan 21, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. ME/CFS Skeptic
    Post

    World ME Alliance, was previously IAFME: International Alliance for ME

    Merged thread I saw this on the Facebook page of the International Alliance For ME (IAFME):
    Post by: ME/CFS Skeptic, Jan 21, 2019 in forum: News from organisations
  17. ME/CFS Skeptic
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Thanks for posting this @Binkie4 The letter I've sent by mail and email regarding Chris Burton has not yet received a response except for the...
    Post by: ME/CFS Skeptic, Jan 20, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  18. ME/CFS Skeptic
    Post

    Relationship Between Exercise-induced Oxidative Stress Changes and Parasympathetic Activity in CFS - (2018) Polli et al

    This is a Belgian study, so I had a quick look. Like their previous publication...
    Post by: ME/CFS Skeptic, Jan 20, 2019 in forum: ME/CFS research
  19. ME/CFS Skeptic
    Post

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    I posted the following comment on Valerie Eliot Smith' blog before reading this thread (the title suggests it's a discussion of the first blog...
    Post by: ME/CFS Skeptic, Jan 18, 2019 in forum: Advocacy Projects and Campaigns
  20. ME/CFS Skeptic
    Post

    Ad campaigns - why hasn't there been one for ME?

    Maybe in a country where TV-ads are cheaper and almost nothing is known about ME/CFS, like France, Germany or Italy this could be a good idea. I...
    Post by: ME/CFS Skeptic, Jan 18, 2019 in forum: Advocacy Projects and Campaigns
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