Lots of the things they are attributing to lockdown are unlikely to be related, for example, kids starting school now (aged 4 to 5) not being...
My daughter was diagnosed by a rheumatologist and the same man did a good report that got me ill health retirement. He clearly believed ME was a...
Moderator note While this hypothesis is interesting, it is as yet unproven, and the subtypes described are hypotheses, not a proven protocol for...
I think there's no better option than rheumatologists as things are at present. Neurologists will put us in FND and prescribe rehab, Rehab...
Hi Karen, Welcome and I'm sorry you haven't been able to post yet. I've alerted the doorkeeping/mod team to see if we can sort out the problem....
That's a really good comprehensive report, @Hutan. I hope the people you submitted it to take notice.
Does it say what people should do if they are on ESA and don't receive a letter by the end of September?
I don't respond well to people who claim a cure but you have to buy the book to find out what it is.
I want to tell people I have a long term chronic illness that makes me feel ill all the time and limits my ability to do things, and that it's a...
Also posted and discussed here: #ThereForME campaign / Building an NHS that’s there for Long Covid and ME
I assume Dr Kane knows some of them, and the people who run the #ThereForMe campaign are in contact with others through Long Covid support groups....
Good to see so many in support. A few surprises given their previous (current?) attitudes towards ME/CFS. If anyone can encourage more clinicians...
Posts about a letter to the UK secretary of state for health, and media coverage, have been moved to: #ThereForME campaign / Building an NHS...
A post has been moved to the discussion thread about the template....
I agree. It's unsuitable because of length and wordiness for anyone with severe ME/CFS. I got around it by not reading all the detail, and just...
I agree there is a big problem here. I think I recall that the first version of this questionnaire did not include PEM at all, with the second...
Can you explain more about what inflammation is, and why you article is wrong?
This thread is worth reading about Aylward's impact on DWP and ME/CFS Blaming the victim, all over again: Waddell and Aylward’s biopsychosocial...
Moderator note We have read the discussion of whether posts should be moved and taken note of points made. We have decided to leave most of the...
I don't get that impression from the information on the other thread: (Baker Institute, Australia) "Funding to advance understanding of the...
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