Dr Bateman is keen on using hours upright with feet on floor (walking, standing, sitting on upright chair) as part of measuring severity and...
I'm not sure that's a fair comparison. Miranda has been in several very popular TV series. The British media treats her as a major celebrity as a...
Thank you @hibiscuswahine for stating that so clearly. It's valuable to have your observations with your medical background.
That was quick! A very useful summary, thank you. It's interesting to see just how badly this trial failed in all its objectives - recruitment,...
Maybe seek advice from a dietician.
That's a good question, @Yann04. Even as a borderline moderate/severe person, I can't do what most people would call 'exercise'. I also voted no....
OMF has branches and/or funds several researchers in different countries, not just the Stanford group led by Ron Davis.
The PACE trial also called all the active arms versions of pacing. GET was also called Simple incremental pacing and CBT was called Complex...
This cost over a million pounds, and they recruited less than half their target number of participants. The Activity Management is GET.
Some links to previous threads: Jul 2019 Protocol | Thread Cost-Effectiveness of Online CBT for Children with CFS/ME Compared to Online Activity...
Moderator note Please be mindful of these rules, and avoid personal insults and speculation about any identifiable individual's health.
I glanced through to try to find out how participants were selected. It seems they contacted some of their existing hEDS patients to invite them...
Couldn't you test it by covering each eye in turn and testing different light levels?
I think my light sensitivity may be one sided when I have a migraine. Worse on the head pain side, but there on both sides.
I hope the trying out medications means proper clinical trials, not just random prescribing.
I also have a question. I admit I haven't been able to keep up with the research, so it may have been answered. I gather Pretorius was studying...
I can't remember. I just remember being caught by surprise by how bad it felt the next day.
I tried the handgrip test multiple times one day a few years ago. The next day my arm muscles were much more painful than usual, but I wasn't crashed.
We haven't a clue what's wrong with you but we confidently state that the cause is a mix of biological, social and psychological factors and we...
The abstract is an excellent distillation of your key points. I'm a bit puzzled by the bit underlined: a symptom-based syndrome characterized by...
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