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  1. Trish
    Post

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    It's shocking how much credence is given to unevidenced theories like this just because the authors want it to be true. The power of eminence and...
    Post by: Trish, Oct 26, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Trish
    Post

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Thanks to George Monbiot for picking this up. I hope he gets a good response.
    Post by: Trish, Oct 25, 2024 in forum: General ME/CFS news
  3. Trish
    Post

    NICE guideline on ME/CFS: robust advice based on a thorough review of the evidence, 2024, Barry et al.

    So disheartening. I immediately think this needs a response. Is there any point?
    Post by: Trish, Oct 24, 2024 in forum: ME/CFS research
  4. Trish
    Post

    Miranda Hart - British comedian

    I did wonder whether the LP/OptimumHealth people use the rice-goes-bad-if-you-insult-it story as a gullibility test to see whether potential...
    Post by: Trish, Oct 24, 2024 in forum: General ME/CFS news
  5. Trish
    Post

    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    I get motion sick as a passenger, not as driver. I think that's a common experience unrelated to ME/CFS.
    Post by: Trish, Oct 24, 2024 in forum: Post-Exertional malaise and fatigue
  6. Trish
    Post

    Painkiller effectiveness for people with ME/CFS

    I'm wondering why you left out ibuprofen.
    Post by: Trish, Oct 24, 2024 in forum: Pain and Inflammation
  7. Trish
    Post

    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    I had a 10 minute ambulance ride recently. Every bump made me tense to hold my body in place. If I'd had to endure several hours I'm sure it would...
    Post by: Trish, Oct 23, 2024 in forum: Post-Exertional malaise and fatigue
  8. Trish
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    It's a public thread, anyone is welcome to share the link.
    Post by: Trish, Oct 23, 2024 in forum: Petitions
  9. Trish
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    We've been asking for longitudinal studies like this for a long time. I don't see why someone can't do one with proper funding.
    Post by: Trish, Oct 23, 2024 in forum: Moderated Threads
  10. Trish
    Post

    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    Do we have evidence of puffy faces? I'm not aware of any. Nor have I noticed it in myself ir my daughter, though for myself I'm not in a fit state...
    Post by: Trish, Oct 23, 2024 in forum: Post-Exertional malaise and fatigue
  11. Trish
    Post

    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    You are not alone. I'm the same. My PEM that fits the definition of PEM including delay, worsening of all symptoms and new ones, as spelled out in...
    Post by: Trish, Oct 23, 2024 in forum: Post-Exertional malaise and fatigue
  12. Trish
    Post

    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    I have different responses to the different stimuli. [SPOILER] [SPOILER] [SPOILER] [SPOILER]
    Post by: Trish, Oct 23, 2024 in forum: Post-Exertional malaise and fatigue
  13. Trish
    Post

    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    Thanks, @EndME, yes, I left out cognitive which needs to be included. I'll add it to the title and first post.
    Post by: Trish, Oct 23, 2024 in forum: Post-Exertional malaise and fatigue
  14. Trish
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    I have started a new thread here Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or...
    Post by: Trish, Oct 23, 2024 in forum: Moderated Threads
  15. Trish
    Thread

    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    I have started this thread in order to reduce diversion of another thread where the subject arose. Here are a couple of quotes from that thread:...
    Thread by: Trish, Oct 23, 2024, 72 replies, in forum: Post-Exertional malaise and fatigue
  16. Trish
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    Why does the fact that for some pwME sensory sensitivities set off worsening of symptoms mean that exertion triggered PEM and studies such as 2...
    Post by: Trish, Oct 23, 2024 in forum: Moderated Threads
  17. Trish
    Post

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I think the Dr Jake Hollis one is worse in a way, as he repeats as fact the unevidenced stuff about stress, adverse childhood experiences,...
    Post by: Trish, Oct 22, 2024 in forum: General ME/CFS news
  18. Trish
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    Moderator note Mods have been asked for advice on what is allowed by our rules in this discussion. This is the relevant rule: This means that if...
    Post by: Trish, Oct 22, 2024 in forum: Moderated Threads
  19. Trish
    Post

    Miranda Hart - British comedian

    The writer of the article completely misses the point that there is no evidence to support brain rewiring as a treatment for ME/CFS, and she...
    Post by: Trish, Oct 22, 2024 in forum: General ME/CFS news
  20. Trish
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    Is it possible for a patient who is very sick to be sedated for a long ambulance trip?
    Post by: Trish, Oct 22, 2024 in forum: Moderated Threads
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