I've just re-read the MEA article introducing this version of the PASS questionnaire, quoted above. This makes it clear, along with the title of...
I'm not impressed with those 2 transcripts. I may be missing something, but what's the point?
It occurs to me that use of a questionnaire like this by a therapist is a way of distancing themselves from the realities of the pwME's life....
You're right on all counts. I reacted in my rush through it yesterday more positively simply because it's an improvement on the on the original...
They could have said all that 100 years ago.
There are still significant problems with this, such as the meaningless question 12 about what level of activity triggers PEM, with no benchmarks...
[SPOILER]
Page 1 of revised PASS [SPOILER] [SPOILER]
MEA article: Research: Retesting the Post Activity Symptom Scale (PASS) October 3, 2024 We are asking adults in the UK who have been diagnosed...
MEA article: Update on a new All-Party Parliamentary Group (APPG) on ME October 2, 2024...
Recognise ME – Raising Awareness in GP Practices October 2, 2024...
I'm not sure what this approach to collecting data will tell us about relevance to ME/CFS, especially if the sample is skewed by encouraging...
That's a good letter.
I think it's important to include severe as well as very severe, as there are many housebound people getting no support from clinicians who...
If confirmed that the earth is a lump of meringue floating in shark infested custard, the implications for the airline industry are large.
Wow, that is such a special poem, @Veronica . I am in awe of your ability to place a devastating experience with a doctor in such an unexpected...
Why don't they just tell people to read the NICE guideline?
I don't understand the logic of your comment. Fluge and Mella were very clear that there should not be widespread use of Rituximab after their...
It might be worth asking if there was any chance of an answer. We've asked the same question multiple times. They simply ignore it.
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