It never had a chance to happen because of the negative response of the community to recommendations by a name committee associated with the...
A lot of people are heavily entrenched with with ME all right. But this is not proposing to change ME but drop CFS, which is far less popular....
I never found this a very convincing reason. Who cares how words/acronyms are spelled backwards. And it’s not even a particularly fatal disease.
(I wasn't sure which forum to post this to). This is being promoted as being a relevance to people with ME. I haven't watched it and know very...
[MEDIA] He also gives the wrong name in the slide: he uses "systemic exercise intolerance disease". The way he says it, people or at least some...
Thanks for posting the link, not sure why it has been deleted. I believe he starts the section by saying something about it being unfortunate that...
It was largely patients and patient groups who started using “ME/CFS” with official entities using CFS and occasionally “CFS/ME”. Now lots of...
Using the argument that one should only use terms that have coding would seem to condemn us to existing terms in perpetuity.
“Chronic Fatigue Syndrome” basically allows for criteria that don’t require post-exertional malaise/post-exertional neuroimmune exhaustion e.g....
Fatigue is an even less specific term.
There are thousands of other conditions: how does one know what to combine with? Normally when I have heard this, it involves pairing up with...
Lots of other agencies/similar in other countries also use “ME/CFS” including the NIH and the CDC. So there is a precedent for agencies using two...
Yes, I suggested this in 2015. It would move away from chronic fatigue syndrome, which I think is a terrible name. But many researchers,...
Useful list. But 16 papers over 7 years isn’t a huge amount especially when some other criteria were also used sometimes. It’s also not clear the...
The International Consensus Criteria paper and International Consensus Primer are both full of ME/CFS and CFS citations.
Free full text: https://www.clinexprheumatol.org/article.asp?a=15345 Review One year in review 2020: fibromyalgia L. Bazzichi1, C. Giacomelli1,...
This isn't biomedical research so I posted it here. Source: Osaka Human Sciences Vol 6, pp 91-106 Date: March 2020 URL:...
For what it’s worth: I satisfy all ME, ME/CFS and CFS criteria. I tend to have nearly every symptom listed that a man can have. But I’ve never had...
It’s also much easier to get government payments than private insurance disability payments in Ireland. My impression is it’s easier to get the...
Free full text: The Disability Dilemma: Difficulties Involving ERISA* Claims for Subjective-Proof Diseases...
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