We can always want more but it is something and it’s not as if it is solely a research charity and it’s not even the only charity raising money...
Yes, I have seen something similar before. Z-scores are generally calculated like that in statistics. Just to clarify that I was talking about...
I believe to convert, the formula would be: (normalised score * healthy population SD used to make normalised score) /10.
Okay, when I was thinking about that I had missed that that the anchoring studies also had that data and didn't solely rely on their responses to...
I’m not sure whether you or anyone has said it already or not but an issue can be that the range of possible scores of fatigue for example could...
This study showed that the Chalder Fatigue Scale was not good at differentiating between different levels of severity of ME. Fatigue in Myalgic...
Regarding the SF-36, it is sometimes scored on a normalized score, with a lower range of scores. I suspect the score of 3 may come from such a...
https://www.sciencedirect.com/science/article/abs/pii/S0026049519301489 Metabolism Volume 100, Supplement, November 2019, 153951 [IMG]...
For what it is worth: https://www.ncbi.nlm.nih.gov/pubmed/17136972
Many people in the thread and elsewhere on the internet have been quick to dismiss the claims in the original posts that many people in the UK...
Yes, it is very interesting in terms of Larun et al. claiming they couldn't use most objective outcome measures because of the protocol.
I have to say I find it frustrating that I'm being criticised for posting this message. I don't think individual posts on a thread should be...
In most of the people I know who previously believed they had ME or CFS and now believe they have Lyme disease, the test was done years later. I...
Well done for finding this. However, people should probably see the page themselves to see what is mentioned. It does mention outcome measures it...
Correction: A bimodal score of 6 was needed to be included in the trial. I can’t remember the exact data in this trial but generally at the start...
It suggests there may be false positives with the labs. It doesn't take away from people who have genuine Lyme, but is relevant to the issue of...
Documentary: Undercover in German Lyme Clinics https://forums.phoenixrising.me/threads/documentary-undercover-in-german-lyme-clinics.55493/post-925964
The author on Instagram wrote to me about their book. I don't know anything about it, so this shouldn't be seen as a recommendation from me....
The Wallman intervention was counted by her herself as pacing in this paper. But it is very different to the interventions designed by Ellen...
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