There are lots of endpoints that can be used in ME/CFS studies e.g. fatigue score; pain score; sleep score; cognitive function (measured with...
https://www.mssociety.org.uk/research/for-researchers This one UK MS charity would have raised 20 (?) or more times what has been raised by all...
Could well be true. My guess is the amount of government/taxpayer- type funding (also) correlates with how much is raised privately. The more...
Yes, some won’t have much to leave. A lot of people in my country do seem to live in property they own by the time they die; people can inherit...
Possibly of interest...
This is an area where we could do a lot better, I believe, without all the challenging issues of running shops and the like.
Here is the email for what it is worth:
[MEDIA]
I was just reading on Action for ME’s Instagram that one quarter of total charitable donations in the UK (i.e. generally rather than specifically...
I remember reading a few years ago in a publication of an Australian ME/CFS charity that the salaries of their grant writers were barely covered...
OK. I remember giving feedback on an earlier version. I think others might have also possibly following a thread on another forum. Perhaps that...
That was very unfortunate but not convinced it is the norm, at least from our experience in Ireland.
Thanks. That’s actually a different document from the IACFS/ME Primer. Both are good in my opinion but am not aware of summaries in English, at...
Have you or anyone a link to a summary of this in English? I don't recall seeing it and am very interested in relatively short documents to...
I think the diagnosis would be missed in more people when they are milder or at an earlier stage with the international consensus criteria than...
There are a lot of long guideline documents. I'm not sure there are that many short ones, apart from some ones from some patient organisations...
You often see this wording in research papers. It’s from the Fukuda et al. criteria. However, the wording was actually “not substantially...
[MEDIA] [MEDIA] [MEDIA]
You don’t need to be a registered stakeholder to make submission so I’d encourage people to simply fill in the form and submit what you think...
Separate names with a comma.
