This is the damage caused by not - -Defining harms in a reasonable & sensible way -Not having appropriate means to record harms -Not listening...
And just think of all that lovely extra data about people they can hoover up and sell on £££!
It's the ultimate Catch 22 - If you say how ill you are and how much you struggle to even attempt the basics, then the perception is that you...
I heard of one case where the person had been provided with a wheelchair and aids about her home, based on an assessment of her function & needs....
Right. So completely ignores the issues with brainfog for a start.
Yes, I think it's a self limiting behaviour in our case. Either there's little they can or will do for you in many cases. You soon realize...
I'd love if we could document if or how harms were measured at all. They have a very blasé attitude to patient safety and have gotten away with...
I was cringing as I read this, what'll we be accused of this time.... but no, surprisingly fair. It is a totally different experience. Several...
Thanks. :thumbup: I'll ask about adding it to our library.
Is there a copy in the library @adambeyoncelowe? I had a look under PEM and Questionnaires and Scales threads and didn't spot it. Would be a...
For some people PEM can hit immediately, for some if can take up for3 days, or can vary. So the same person at early onset might experience it...
IM was supposed to be going on a short trip which would involve 2 international airports each way, but he can't get flight times that work. So,...
I'm in the south east of England. I'm pretty much housebound all the time. Might make it out once a week and, ME permitting, I'll still go out....
Quick aside -sorry - Could you cut them out with a scissors @Wonko? Sometimes there's just enough room at the edge of the foil blister.......
Very thought provoking and moving. Humans, no matter their circumstances, need time and space to grieve, be angry, be sad. It's only in...
:rofl::rofl::rofl: Sarcastic laughter from the UK.- Levothyroxine - street value of zero, non addictive, essential for hypothyroidism and...
Yeah, that's what I thought too, which is why I got IM to check them too. Nope, warm either side of the cold patch.
I'm not sure of when it was, maybe when a parent died, but my siblings and I all had to sign paperwork. This was shortly before I was diagnosed...
No, I don't think I've experienced this in a specific joint, but occasionally in a hand or foot (not symmetrical), or soft tissue. It doesn't...
I do occasionally get cold patches. I'm not sure if it was restricted to my knees though, but it may be that I just didn't notice until it...
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