Telling your doctor that you have 'orthostatic intolerance' isn't going to describe how this negatively/disables your life either. I got...
What term would you suggest better describes PEM in one or two words to a physician w/o a biomarker? We could also add that over exertion...
Funny thing is that I found drinking warm milk (hot cacao, pink of salt) to be very hydrating and helped with orthostatic stress. I don't urinate...
Sorry, I missed this post yesterday. Yes, I've come to learn from reading M.E groups/forums that PEM does vary from person to person....
Abstract Purpose Bolus water drinking, at room temperature, has been shown to improve orthostatic tolerance (OT), probably via sympathetic...
Abstract A simple bodyweight squat is sufficient to cause substantial stress on the autonomic nervous system (ANS) via ~30–50 mmHg blood pressure...
To be fair, even Leonard A. Jason has difficulty defining what is occurring during PEM. He uses 'fatigue' a lot in his definition. I don't...
The ramifications of LC will certainly put more focus on how the immune system may be abnormally sensitive to the modulatory influence of the...
I had a relapse from taking Imunovir for 3 weeks that reactivated EBV and HHV6. I slowly improved years after that but never regained my...
I recovered from the initial virus and my health started improving (80-90%) slowly over the first 5-6 years. The main difference is that I didn't...
I don't get dizziness/lightheaded when I go from lying down to standing in general, but I do get blurry vision and head, chest pressure when...
The "PEM" episode I described above was alleviated by rest (2 days). This is not the same as delayed PEM I experience from going over my energy...
What do mean by M.E is 'something more'. What you are describing in your case is post-infectious syndrome, not M.E. I had...
But PEM isn't alleviated by rest. This is not describing the pathophysiology of PEM as it relates to M.E. Going back to ones baseline after...
I agree with JE that there is no reason to assume that pwME in particular have low mg stores, malabsorption issues are not uncommon for pw...
I took injections back in early 2000 for a couple of years to bring up my mg stores. This is the 'evidence' I based my usage on. I use mg...
And even then it's difficult to know for sure, symptoms might be gone but . . .
Moved post Nature correspondence: Studying severe long COVID to understand post-infectious disorders beyond COVID-19 by Petter Brodin et al...
Collectively, we believe that our genetic and immunological studies of patients with severe long COVID hold potential for better understanding of...
A friends son (32 yrs old) was seeing a physiotherapist for a couple of years for lower back pain, the physiotherapy wasn't helping, his back...
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